Tag

Neurological
In the face of serious diagnoses like Parkinson’s disease, family caregivers emerge as unsung heroes, providing invaluable support to millions of patients worldwide.  As symptoms progress, patients often rely on caregivers for assistance with daily tasks, medical appointments, medication management, and navigating the complexities of healthcare systems.  With their help, many patients can maintain independence...
Hey everyone, today I want to share the inspiring story of the Ruehl family and their journey with Ataxia.  Their story is a powerful reminder of resilience, hope, and the importance of community support. The Diagnosis The Ruehl family’s journey began when they noticed something was different with their daughter, Avery. She struggled with balance...
Hi everyone, I recently read a touching story about Mark Desa, who lives outside Toronto, Canada.  Mark has ARCA1, or Autosomal Recessive Cerebellar Ataxia type 1, and he shared his journey with this rare condition. Mark’s childhood was filled with happiness and normalcy.  He was active in karate and weight training as he grew older....
Remember to breathe. It is after all, the secret of life. Gregory Maguire, A Lion Among Men Breathing is necessary for survival, but its power goes beyond that. Our physical and emotional health can be greatly impacted by the way we breathe. Becoming familiar with certain breathing methods can be especially helpful for those of us living...
Today, I want to share an inspiring story that I recently came across on the Faces of Ataxia blog.  It’s about Jodie, a remarkable woman living with ataxia.  Her journey is one of resilience, determination, and a touch of humor, making it a must-read for anyone facing challenges in their own lives. Meet Jodie: A...
Healing Journey , published by Lily Pierce February 3, 2024 The last few weeks have marked the start of a new year but also brought a lot of change for me, at least in my day-to-day life. For several years now, I’ve worked out in a gym with a physical trainer. But at the end of December 2023,...
In a poignant narrative shared by Alaysha’s mom and featured by the National Ataxia Foundation, we are offered a glimpse into the life of a courageous young girl battling ataxia-telangiectasia (A-T). Alaysha’s journey with ataxia began with uncertainties in infancy, leading to a general diagnosis of ataxia. Despite seeming to outgrow her wobbling, her symptoms...
Martha Strange’s journey with Parkinson’s disease led her to a point where her cherished activities, like playing with her granddaughter and enjoying a round of golf, seemed like distant memories. However, a consultation with neurosurgeon Dr. Guy McKhann at Columbia University Medical Center/NewYork-Presbyterian Hospital changed everything. Dr. McKhann suggested deep brain stimulation, a procedure designed...
Rare Disease Day: An Insight into SDG Resources and Global Awareness Initiatives Rare Disease Day is an annual global event that brings attention to rare diseases and the millions of people affected by them. It is held on the last day of February, with the primary aim of raising awareness among the general public, healthcare...
Does living with multiple sclerosis sometimes make you feel sad, tired, and unmotivated? If so, what you’re feeling may be a normal psychological reaction to coping with a life-changing disease. Or it may be the result of actual physical changes because of MS. While medication can help restore balance to brain chemistry affected by MS,...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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