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Diagnosis and Treatment
Hope is being able to see that there is light despite all of the darkness. Desmond Tutu I have mentioned Neurofeedback therapy in past articles and now that I have completed a few sessions, I wanted to expand on my experience. As always, I am trying to learn what treatments and therapies are working for everyone. If...
Hey everyone, today I want to share the inspiring story of the Ruehl family and their journey with Ataxia.  Their story is a powerful reminder of resilience, hope, and the importance of community support. The Diagnosis The Ruehl family’s journey began when they noticed something was different with their daughter, Avery. She struggled with balance...
Sam Blade, a vibrant 25-year-old from Sydney and Melbourne, graciously shares his journey with Friedreich’s Ataxia (FA) in an interview with FARA Ambassador Dragana Obadic. Diagnosed at 15, Sam navigates the complexities of FA with resilience and determination, finding new passions and redefining his purpose along the way. Despite the challenges posed by FA, Sam...
In her illuminating piece, “About Brain Donation – Have You Ever Wondered?”, Mary Ann Peterson, NAF Research Associate, delves into the profound impact of brain donation in the fight against Ataxia. With touching insights from both donors and their families, as well as individuals directly affected by the disease, Peterson sheds light on the importance...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
This site is about building Ataxia Awareness and one of the many types is Gluten Ataxia. Please consult a doctor if you feel like you may have this condition. Gluten ataxia is a progressive condition, which means that symptoms may start off mild and almost unnoticed, and gradually progress to being debilitating. In recent years, there...

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michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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