By

Michael Mantz
A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts.  Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...
At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...
Hope is being able to see that there is light despite all of the darkness. Desmond Tutu I have mentioned Neurofeedback therapy in past articles and now that I have completed a few sessions, I wanted to expand on my experience. As always, I am trying to learn what treatments and therapies are working for everyone. If...
In a heartwarming story shared by Jason Wolfer, we meet Mary Scheetz, a resilient individual living with Spinocerebellar Ataxia number Eight in Portland, Oregon.  Mary’s journey with Ataxia began over a decade ago, marked by a series of symptoms that gradually led to her diagnosis. Reflecting on her experience, Mary recalls the onset of food...
Fatigue is the shadow of ataxia, but within that shadow, we can discover the strength to shine. Living with ataxia, a neurological disorder that impairs movement and coordination, comes with special difficulties that go beyond physical symptoms.  Constant fatigue is one of the most common and confusing symptoms that people with ataxia face.  It’s important to...
In a heartfelt account shared by Jason Wolfer, we meet Chanda Huy, who is courageously navigating the challenges of a recent diagnosis of hereditary Spinocerebellar Ataxia.  Just a year ago, Chanda received this life-altering news, inherited from her father, which has profoundly impacted her daily life. Simple tasks that were once effortless for Chanda—like walking,...
Individually, we are one drop. Together, we are an ocean. Ryunosuke Satoro As a person with a lifelong movement disorder, I understand the challenges that we all face living with Ataxia.  We see the world differently than most!  But through the ups and downs, there’s a definite spirit of resilience.  We are all living our...
In the face of serious diagnoses like Parkinson’s disease, family caregivers emerge as unsung heroes, providing invaluable support to millions of patients worldwide.  As symptoms progress, patients often rely on caregivers for assistance with daily tasks, medical appointments, medication management, and navigating the complexities of healthcare systems.  With their help, many patients can maintain independence...
In a touching narrative shared by the National Ataxia Foundation, we meet the Ruehl family—Susan, Charlie, and Mary—as they courageously navigate the challenges of living with Ataxia. The journey begins with Susan’s recollection of noticing her children, Charlie and Mary, experiencing difficulties with balance and movement during their teenage years. Despite initial dismissals, Susan’s instincts...
Mark Desa’s story sheds light on the challenges and resilience associated with living with a rare disease, regardless of geographical borders.  Hailing from Ontario, Canada, Mark shares his journey with Autosomal Recessive Cerebellar Ataxia type 1 (ARCA1.).  Offering insights into diagnosis, prognosis, and personal strategies for coping and thriving. Mark’s journey with ARCA1 began with...
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My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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