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Movement
At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...
At least, they shouldn’t be. But here we are… Why is the use of medical devices stigmatized? I recently found out someone I know has been struggling with their mobility. Rather than sink to the level of using a walker or wheelchair*, they choose to stay home most days. It’s sad to me when people...
Life is about accepting the challenges along the way, choosing to keep moving forward, and savoring the journey Roy T. Bennett When we moved to our ‘forever’ home in 2013, we extended it to add a master bedroom with an ensuite wet room. We future-proofed the bedroom by including a strengthened ceiling to accommodate a...
I am nearsighted and have worn glasses since I was a child. Nowadays, I wear them pretty much 95% of the day; when I’m on the computer, watching TV, or just existing in the world. If I wear them while I’m reading, however, they tend to give me a headache, so when I take up...
In a heartfelt account shared by Jason Wolfer, we meet Chanda Huy, who is courageously navigating the challenges of a recent diagnosis of hereditary Spinocerebellar Ataxia.  Just a year ago, Chanda received this life-altering news, inherited from her father, which has profoundly impacted her daily life. Simple tasks that were once effortless for Chanda—like walking,...
Individually, we are one drop. Together, we are an ocean. Ryunosuke Satoro As a person with a lifelong movement disorder, I understand the challenges that we all face living with Ataxia.  We see the world differently than most!  But through the ups and downs, there’s a definite spirit of resilience.  We are all living our...
Disappointment is a part of life. From being let down by relatively inconsequential things like a series finale or the outcome of the latest football game to major pain points like finding out your person isn’t who you thought they were, the sting of disappointment is familiar. Whichever side of it you’re on – the one who is disappointed or...
Researchers at UMass Lowell are studying whether a small natural molecule could treat a genetic disorder that causes muscle weakness and progressive nervous system damage.  Funded by a $313,000 grant from the U.S. Department of Defense, Asst. Prof. Yuho Kim and his team are investigating the potential of a natural molecule, hinokitiol, to alleviate mitochondrial...
Remember to breathe. It is after all, the secret of life. Gregory Maguire, A Lion Among Men Breathing is necessary for survival, but its power goes beyond that. Our physical and emotional health can be greatly impacted by the way we breathe. Becoming familiar with certain breathing methods can be especially helpful for those of us living...
In a touching narrative published on April 23, 2020, Jodie Kawa shares her journey with Spinocerebellar Ataxia type 2 (SCA2), shedding light on the impact of the disease on her life and the strength she finds in her community. Jodie’s awareness of Ataxia began at age ten when she learned of her mother’s diagnosis and...
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My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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