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Emotional
At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...
Life is about accepting the challenges along the way, choosing to keep moving forward, and savoring the journey Roy T. Bennett When we moved to our ‘forever’ home in 2013, we extended it to add a master bedroom with an ensuite wet room. We future-proofed the bedroom by including a strengthened ceiling to accommodate a...
I am nearsighted and have worn glasses since I was a child. Nowadays, I wear them pretty much 95% of the day; when I’m on the computer, watching TV, or just existing in the world. If I wear them while I’m reading, however, they tend to give me a headache, so when I take up...
In a heartfelt account shared by Jason Wolfer, we meet Chanda Huy, who is courageously navigating the challenges of a recent diagnosis of hereditary Spinocerebellar Ataxia.  Just a year ago, Chanda received this life-altering news, inherited from her father, which has profoundly impacted her daily life. Simple tasks that were once effortless for Chanda—like walking,...
Individually, we are one drop. Together, we are an ocean. Ryunosuke Satoro As a person with a lifelong movement disorder, I understand the challenges that we all face living with Ataxia.  We see the world differently than most!  But through the ups and downs, there’s a definite spirit of resilience.  We are all living our...
Mark Desa’s story sheds light on the challenges and resilience associated with living with a rare disease, regardless of geographical borders.  Hailing from Ontario, Canada, Mark shares his journey with Autosomal Recessive Cerebellar Ataxia type 1 (ARCA1.).  Offering insights into diagnosis, prognosis, and personal strategies for coping and thriving. Mark’s journey with ARCA1 began with...
Disappointment is a part of life. From being let down by relatively inconsequential things like a series finale or the outcome of the latest football game to major pain points like finding out your person isn’t who you thought they were, the sting of disappointment is familiar. Whichever side of it you’re on – the one who is disappointed or...
Remember to breathe. It is after all, the secret of life. Gregory Maguire, A Lion Among Men Breathing is necessary for survival, but its power goes beyond that. Our physical and emotional health can be greatly impacted by the way we breathe. Becoming familiar with certain breathing methods can be especially helpful for those of us living...
In a poignant narrative shared by Alaysha’s mom and featured by the National Ataxia Foundation, we are offered a glimpse into the life of a courageous young girl battling ataxia-telangiectasia (A-T). Alaysha’s journey with ataxia began with uncertainties in infancy, leading to a general diagnosis of ataxia. Despite seeming to outgrow her wobbling, her symptoms...
In part 1 of this special two-part series, I exposed two surprising truths about anxiety and introduced you to additional considerations that can negatively affect mental health. If you missed it, be sure to check out the two little-known secrets I revealed last time here– that anxiety can be a good thing, and that it...
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My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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