Jodie’s Journey with Ataxia


In a touching narrative published on April 23, 2020, Jodie Kawa shares her journey with Spinocerebellar Ataxia type 2 (SCA2), shedding light on the impact of the disease on her life and the strength she finds in her community.

Jodie’s awareness of Ataxia began at age ten when she learned of her mother’s diagnosis and the potential hereditary risk for herself and her brother.  

While initially difficult, Jodie eventually recognized subtle signs in herself. Such as balance issues. Prompting her to seek medical evaluation later in life.

After a visit to the neurologist and a confirming blood test, Jodie received her SCA2 diagnosis at forty years old.  Despite the challenges, Jodie’s resilience shines through as she actively engages with the Ataxia community. Attending conferences and finding solace and support in her local support group.

Over nearly a decade since her diagnosis, Jodie has immersed herself in advocacy and fundraising efforts. 

Showcasing her determination to raise awareness and support others affected by Ataxia.  Her story serves as a testament to the power of community. And the importance of finding connection and solidarity in the face of rare neurological disorders like Ataxia.

We would like to thank Jason and Jodie for sharing this inspirational story with us. Please share your thoughts and/or comments on this or any other article. If you would like to get involved and share your experience with Ataxia, please get in contact with us and join Our Community today. A place where we empower you to build a healthy lifestyle and raise overdue Ataxia Awareness. Experience transformative storytelling and share your story to inspire positive change.

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