Rare Disease Day: An Insight into SDG Resources and Global Awareness Initiatives Rare Disease Day is an annual global event that brings attention to rare diseases and the millions of people affected by them. It is held on the last day of February, with the primary aim of raising awareness among the general public, healthcare...
The National Ataxia Foundation (NAF) is breaking new ground in the world of Name, Image, and Likeness (NIL) partnerships. With a focus on raising awareness and funds for a rare neurodegenerative disease known as Ataxia.  Athletes from the University of Minnesota, Oklahoma State, Stanford, and the University of Miami have joined forces to support research...
Let’s meet Krystal Schulze, whose journey with Ataxia took an unexpected turn due to a brain tumor. Discovered during her high school years.  Krystal shares her courageous story of resilience and adaptation as she navigates life with Acquired Cerebellar Ataxia (ACA). Diagnosed at the age of 18, Krystal’s life took a drastic turn as she...
Zoyeb Mohamed Zia’s life took a drastic turn when he was diagnosed with Ataxia during high school. Despite the initial challenges and uncertainty surrounding his condition, Zoyeb’s resilience and determination propelled him forward. Supported by his family, he pursued his education. And is now working as an Assistant Professor of Zoology, with plans to start...
Lisa Antonelli Cole’s journey to an ataxia diagnosis was marked by years of misdiagnosis and frustration.  After experiencing symptoms such as dizziness, lack of coordination, and imbalance for years, Lisa underwent a series of medical appointments, only to be dismissed with treatments for vertigo and chronic anxiety. It wasn’t until a cardiologist recommended she see...
JC Colyer’s life took an unexpected turn when he was diagnosed with Cerebellar Ataxia in 2007, transforming what he once considered normal clumsiness into a debilitating condition.  Despite the challenges, JC’s resilience and determination have been unwavering, propelling him to become an advocate for people with disabilities. Following his diagnosis, JC faced the daunting reality...
Population Estimate:  Fewer than 1000 people in the U.S. have this disease. Imagine waking up one day and finding it increasingly difficult to control your movements. Simple tasks like walking, writing, or even eating become monumental challenges.  This is the harsh reality for those living with ataxia, a group of neurological disorders that affect coordination...
In recent years, innovations in tardive dyskinesia treatment have shifted the balance of power back to patients. Previously, those experiencing this debilitating movement disorder often faced limited options and significant social stigma. However, the introduction of novel VMAT2 inhibitors has provided hope and relief for many individuals. Tardive dyskinesia, characterized by involuntary movements such as...
What exactly is metaphysical wellness? Do you want to improve your spiritual well-being in a more meaningful way? Do you think you’ve lost touch with who you really are or are you experiencing a lot of stress and anxiety? If so, you are not the only one. When I look around and see how people are...
What exactly is Community Voice and how can I get involved? When I was putting together my concept for the website/blog, I wanted to have a place where people can learn about what life is like with Ataxia.  This area is an opportunity to hear from you, your family, friends, loved ones, caregivers, etc., who...

My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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