A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts.  Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...
Dr. Antonio Barbera, a former obstetrician-gynecologist living with multiple sclerosis, is prescribing an unconventional treatment for serious neurological diseases: ping pong.  His initiative, Table Tennis Connections’ NeuroPong program, launched in Fort Collins, Colorado, in 2021 and has since garnered attention nationwide. Meeting regularly at the Council Tree Covenant Church, participants engage in ping pong sessions...
Movement disorders like Ataxia, Parkinson’s, and Huntington’s can significantly impact our daily lives, affecting everything from work to leisure activities.  Recognizing the importance of wise policymaking in supporting these individuals, the Movement Disorder Policy Coalition is dedicated to uniting advocates to inform policies that prioritize access to treatment and patient-centered care. One critical area of...
You can read Lily’s previous article HERE.After taking the new medicine called Skyclarys for Friedreich’s Ataxia for a little over one month, I can share some updates and observations. Like the condition itself, these meds affect each patient differently, and our experiences all vary. I haven’t noticed any changes to my balance and coordination, two...
As I write this, I’m on my second day of taking the only FDA-approved medication for Friedreich’s Ataxia – Skyclarys, also known as Omaveloxolone. Friedreich’s Ataxia is a rare condition that causes progressive damage to the spinal cord, peripheral nerves, and the brain, resulting in uncoordinated muscle movement, balance issues, walking difficulties, and more. It’s...
Through the rhythm of music, we find a bridge that unites the discord of ataxia, guiding every step towards harmony and newfound freedom. Unknown The human body’s ability to move seamlessly is a gift often taken for granted. However, even simple movements can be difficult for those of us with movement problems like Ataxia. Ataxia refers to...
7 April 2021 – Healx – Article from Marth’s website:  https://miracle-answer.org/a-cure/Ataxia UK is the leading charity in the United Kingdom for people affected by ataxia. An umbrella term for a group of neurological disorders. That targets the nervous system and affects balance, coordination, and speech. FARA (Friedreich’s Ataxia Research Alliance) is a non-profit organization in the...
Have you ever wondered what is like to live a life knowing that as each day passes, you might be losing some physical or mental abilities you once had? Gain perspective on this experience with this question. Think about that, I mean, really think about what that would mean to you personally.  How would your life...
There are several institutional websites with great information on Ataxia.  For this article, I am using points from Mayo Clinic, National Ataxia Foundation, and Johns Hopkins Medicine.  I have personally attended appointments at Mayo Clinic, both in Minnesota and Arizona, and Johns Hopkins, so I am confident in using their information to form this article. ...
The National Ataxia Foundation states, “Ataxia is a degenerative disease of the nervous system. Many symptoms of Ataxia mimic those of being drunk, such as slurred speech, stumbling, falling, and incoordination. These symptoms are caused by damage to the cerebellum, the part of the brain that is responsible for coordinating movement. Ataxia treatment involves a...

My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

More About Me

Follow Us

Follow this Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.

Popular Post

apple watch - ataxia
Revolutionizing Ataxia Management: The Apple Watch Benefits
my expectations - Michaelmantz ataxia blogs
Relaxing My Expectations for My Body
Choose Your Path: The Power of Making Choices and Creating Your Own Destiny – Part 2

Recent Post

Relaxing Evening,
4 Tips To Have A Relaxing Evening & Reduce Your Stress
Yesenia Ramos Journey,
Faces of Ataxia: Yesenia Ramos’ Journey and Poetry
wheelchairs are not embarrassing,
Wheelchairs are not Embarrassing!

My New Stories

Ataxia Patient Registry
Relaxing Evening
Yesenia Ramos Journey
wheelchairs are not embarrassing
Respect for Mobility Aids