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Neurological
Prepare for an exciting and impactful event—Ataxia Advocacy Day 2024 on September 25th! This event is a fantastic opportunity for us to unite, raise our voices, and advocate for those affected by Ataxia. What’s Happening on Advocacy Day? Ataxia Advocacy Day 2024 is about making our voices heard on Capitol Hill.  You can meet with...
Strength does not come from physical capacity. It comes from an indomitable will Mahatma Gandhi Living with a disability brings many challenges, but it also offers opportunities for growth, resilience, and hope. It is important to focus on the positives and find ways to adapt and thrive despite the difficulties. Understanding Disabilities Many different types...
I have some fantastic news to share with you today. At MichaelMantz.com, we constantly strive to provide the best content and resources to help you stay informed and empowered about overall health and Ataxia awareness. I’m excited to share our recent changes and additions to our website with you. Let’s dive into the details! Introducing...
I just read some exciting news about lupus. Although this story is unrelated to Ataxia or movement, I think news like this could be critical to the future of our treatments.  Scientists have made a groundbreaking discovery, pinpointing what could be the root cause of this challenging autoimmune disease.  Let’s look at the details and...
In 1956, Josephine’s son was born healthy and seemingly normal. By nine months, he walked with assistance, and his language skills developed well, though speaking proved difficult. Frequent falls and coordination issues marked his early years. At 5, doctors discovered severe vision problems, and while glasses helped, his balance and coordination continued to worsen. His...
Ian, born in 1956, shares his life experiences with ataxia-telangiectasia (A-T), an autosomal recessive condition.  At a young age, teachers noticed he fell more than other children, and at seven, he was misdiagnosed with cerebral palsy.  Despite his challenges, Ian enjoyed his childhood, especially piano lessons, until spasms forced him to stop. At eleven, Ian...
Right shoes take you good places Shoes have always been important to me.  I remember begging my parents for the newest and “coolest” styles, mainly basketball shoes.  I know I am not the only one – almost everyone has gone through the same routine at some point.  As my Ataxia has progressed, I have searched...
Change the way you look at things, and the things you look at change. Wayne Dyer Perspective Changes Everything is how Lily Pierce feels…… Perspective means realizing that others’ life experiences may completely differ from ours. What we view as normal and what we expect depends on how we grew up, what we see around us,...
April 2024: After 25 years of research, scientists at the University of Utah have uncovered the genetic cause of Spinocerebellar Ataxia 4 (SCA4), a rare and progressive neurological disorder. This discovery gives affected people hope for future therapies. Spinocerebellar Ataxia 4 (SCA4) is a rare, debilitating condition that disrupts movement. Symptoms often start with difficulty...
A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts.  Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...
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michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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