I was born with Spinocerebellar Ataxia 15. I was diagnosed with ataxia at 28, but lived for decades without knowing the specific form. It wasn’t until a genetic test in 2023 that I finally had the full picture.

Michael D. Mantz
Advocate & Author
Living with ataxia or any other rare chronic condition – or carrying the support role for someone who is – seeking deep peer connection, support, genuine validation, and real stories.
Media Hook: My upcoming memoir, Echoes of Yesterday, Bridges to Tomorrow, is actively available for advance media reviews, profiles, and publishing inquiries.
I partner selectively with forward-thinking brands and organizations whose values completely align with the ataxia, disability, and rare disease community. If you are seeking a highly credible, community-trusted voice to represent your mission, I offer sponsored content, ambassador relationships, co-branded campaign collaborations, and strategic consulting.
Through InspireThread.com, we can also explore awareness-driven apparel collaborations, bulk custom orders, and targeted community merchandise campaigns centered on real, resonant stories.
I speak about the absolute realities of living with progressive ataxia, navigating a sudden rare disease diagnosis, and what it truly means to reinvent yourself after a massive business/finance pivot when the stakes are personal. Available for mainstage keynotes, panel moderation, and virtual engagements.
Every presentation is stripped of standard corporate motivational cliches. Instead, I deliver a candid, grounded, and deeply human conversation that leaves your attendees with lasting emotional clarity and action items.

This memoir is the project closest to my heart – and the one engineered to have the deepest global impact. It is not a standard disease narrative. It is a full life story covering complex relationships, travel adventures, sudden loss, deep reinvention, and the quiet, structured work of building something of profound value while managing a progressive neuro-degenerative condition that didn’t even have a formal name in my life until I was 28 years old.
The manuscript is actively in progress. I am seeking dedicated literary representation, and am completely open to early-stage media partnerships, advance publication profiles, and structural publishing conversations.