Tag

Coordination
At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...
At least, they shouldn’t be. But here we are… Why is the use of medical devices stigmatized? I recently found out someone I know has been struggling with their mobility. Rather than sink to the level of using a walker or wheelchair*, they choose to stay home most days. It’s sad to me when people...
Hope is being able to see that there is light despite all of the darkness. Desmond Tutu I have mentioned Neurofeedback therapy in past articles and now that I have completed a few sessions, I wanted to expand on my experience. As always, I am trying to learn what treatments and therapies are working for everyone. If...
Fatigue is the shadow of ataxia, but within that shadow, we can discover the strength to shine. Living with ataxia, a neurological disorder that impairs movement and coordination, comes with special difficulties that go beyond physical symptoms.  Constant fatigue is one of the most common and confusing symptoms that people with ataxia face.  It’s important to...
In a touching narrative shared by the National Ataxia Foundation, we meet the Ruehl family—Susan, Charlie, and Mary—as they courageously navigate the challenges of living with Ataxia. The journey begins with Susan’s recollection of noticing her children, Charlie and Mary, experiencing difficulties with balance and movement during their teenage years. Despite initial dismissals, Susan’s instincts...
Mark Desa’s story sheds light on the challenges and resilience associated with living with a rare disease, regardless of geographical borders.  Hailing from Ontario, Canada, Mark shares his journey with Autosomal Recessive Cerebellar Ataxia type 1 (ARCA1.).  Offering insights into diagnosis, prognosis, and personal strategies for coping and thriving. Mark’s journey with ARCA1 began with...
Researchers at UMass Lowell are studying whether a small natural molecule could treat a genetic disorder that causes muscle weakness and progressive nervous system damage.  Funded by a $313,000 grant from the U.S. Department of Defense, Asst. Prof. Yuho Kim and his team are investigating the potential of a natural molecule, hinokitiol, to alleviate mitochondrial...
In a poignant profile shared by Jason Wolfer on March 12, 2020, Travis Guy Lebel’s resilience and determination shine through as he navigates life with Spinocerebellar Ataxia (SCA) since birth. Travis’s journey with Ataxia began with early signs noticed by his parents, leading to years of medical inquiries and specialist visits.   Despite the challenges,...
Does living with multiple sclerosis sometimes make you feel sad, tired, and unmotivated? If so, what you’re feeling may be a normal psychological reaction to coping with a life-changing disease. Or it may be the result of actual physical changes because of MS. While medication can help restore balance to brain chemistry affected by MS,...
The journey of Steven Denning, a businessman and philanthropist, epitomizes the intersection of science, hope, and generosity in the realm of ataxia treatment.  Diagnosed with CANVAS, a condition characterized by cerebellar ataxia and neuropathy, Denning turned to Dr. Dimitri Krainc and Northwestern University Feinberg School of Medicine’s cutting-edge precision medicine techniques for answers. In Dr....
1 2 3 7

My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

More About Me

Follow Us



Follow this Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.

Popular Post

apple watch - ataxia
Revolutionizing Ataxia Management: The Apple Watch Benefits
12/09/2023
my expectations - Michaelmantz ataxia blogs
Relaxing My Expectations for My Body
09/26/2023
path
Choose Your Path: The Power of Making Choices and Creating Your Own Destiny – Part 2
05/05/2023

Recent Post

Ataxia Patient Registry,
Mobilizing a Community for Ataxia Treatments: The Importance of the Ataxia Patient Registry
06/06/2024
Relaxing Evening,
4 Tips To Have A Relaxing Evening & Reduce Your Stress
05/29/2024
wheelchairs are not embarrassing,
Wheelchairs are not Embarrassing!
05/14/2024

My New Stories

Ataxia Patient Registry
Relaxing Evening
Yesenia Ramos Journey
wheelchairs are not embarrassing
Respect for Mobility Aids
Neurofeedback-therapy-ataxia-michaelmantz
Mary
TBI