At least, they shouldn’t be. But here we are… Why is the use of medical devices stigmatized? I recently found out someone I know has been struggling with their mobility. Rather than sink to the level of using a walker or wheelchair*, they choose to stay home most days. It’s sad to me when people...
Life is about accepting the challenges along the way, choosing to keep moving forward, and savoring the journey Roy T. Bennett When we moved to our ‘forever’ home in 2013, we extended it to add a master bedroom with an ensuite wet room. We future-proofed the bedroom by including a strengthened ceiling to accommodate a...
Megan, a former high school English teacher turned stay-at-home mom, opens up about her life with Spinocerebellar Ataxia Type 1 (SCA1) in a bid to raise awareness about the condition. Despite a seemingly normal upbringing filled with achievements and adventures, Megan noticed subtle changes in her mobility around age 20. These changes, reminiscent of her...
In my last blog, I shared the planned version of my train trip. Now I will share the real experience. What do they say about plans again? This is a longer blog, but it captures my feelings – good and bad – about the ups and downs of “accessible” traveling.  The Train Trip Begins It was...
Hello! My name is Lisa, and I live in Canada. At the end of June, I’m going to be traveling by train to visit one of my oldest friends, who lives in Ottawa, Ontario. Originally published on Day Undefined. This trip will have several legs, starting with taking DARTS (Disabled and Aged Regional Transit System)...
I went on vacation in July, and I want to share my experience of flying with a disability with you. Flying is a hassle for anyone, let alone someone with a disability. I traveled to Florida with my parents. My mom booked the flight; she said she marked the ticket that I have a manual...
As I think I mentioned in another article, the thing that bothered me the most about last summer’s pandemic reality was not being able to walk and go outside. There were stairs all around my building, so I couldn’t leave easily, and while I could take my car to go somewhere … where would I...
So, what would I say to someone newly diagnosed (with any disability, not just ataxia)? Surround yourself with other disabled people. I am speaking here as someone who got diagnosed with a degenerative physical disability in young adulthood. Who had spent her whole life up until then as an able-bodied person. Or at least thinking...
Hello! My name is Elise, I am a 34-year-old Canadian woman living on the Montreal South Shore. Also with me is my eight-year-old cat Kenji. I am a disabled freelance language professional: translating, editing, proofreading, beta-reading, I do it all, in both French and English! In my free time, I love reading, writing, and watching...
At age 16, I was diagnosed with a genetic neurological disorder called Friedreich’s Ataxia. I’d been experiencing symptoms since age 11 with no logical explanation up to then.  I staggered when I walked, I couldn’t carry a cup of water, and I dropped things a lot.  But little did I know that my body cells…….....
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My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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My New Stories

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