A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts.  Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...
In a poignant narrative shared by Alaysha’s mom and featured by the National Ataxia Foundation, we are offered a glimpse into the life of a courageous young girl battling ataxia-telangiectasia (A-T). Alaysha’s journey with ataxia began with uncertainties in infancy, leading to a general diagnosis of ataxia. Despite seeming to outgrow her wobbling, her symptoms...
Mary Hogan’s journey delves deep into her family’s genealogy, unraveling the mysteries of a pervasive genetic disorder known as SCA27B.  Unlike the casual exploration many people undertake on genealogy websites, Mary’s journey is driven by a profound familial connection to Ataxia SCA27. Which has afflicted numerous members of her family. Nicknamed the “Darby Glide” in...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
Dr. Tetsuo Ashizawa, affectionately known as Dr. Tee, has carved an extraordinary path in the realm of ataxia research and patient care, leaving an indelible mark on the medical community. Born in Tokyo in 1948, Dr. Tee’s journey from medical school in Japan to becoming an internationally acclaimed physician-scientist in the United States was filled...
Last weekend, I attended the Friedreich’s Ataxia symposium in Philadelphia, PA for the first time since before the pandemic. My dad and boyfriend came for physical and moral support. The event line-up hasn’t changed in a while. (Click to read about the 2019 symposium.) The weekend began Sunday with a rideATAXIA fundraiser, followed by a meet &...
Imagine a world where the simple act of walking, balancing, or coordinating your movements becomes a daily struggle.Learning to live with a progressive condition is a harsh reality. As I get older, simple things that I used to take for granted are becoming more and more difficult. I know everyone with Ataxia and other movement disorders...
Alex Fielding’s life took an unexpected turn when he was diagnosed with Friedreich’s Ataxia (FA) in his mid-twenties.  Despite the challenges posed by this rare, progressive disease, Alex has found ways to maintain his independence and make meaningful contributions to the FA community. Returning to Rhode Island and finding solace in family support, Alex channels...
Marth’s website:  https://miracle-answer.org/a-cure/ and Post Published: April 29, 2022 Biogen have announced that they are starting a Phase I clinical trial for their Spinocerebellar Ataxia Type 3 (SCA3) treatment BIIB132. A Phase I trial tests a treatment in a small group of people to look at its safety and gain information about dosage levels. BIIB132 is...
To keep the body in good health is a duty, otherwise we shall not be able to keep our mind strong and clear Buddha It’s all too simple to overlook the significant impact that food has on our emotional health in our fast-paced and demanding lives.  We frequently use food as a means of comfort,...
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My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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