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National Ataxia Foundation
A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts.  Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...
Hey everyone, today I want to share the inspiring story of the Ruehl family and their journey with Ataxia.  Their story is a powerful reminder of resilience, hope, and the importance of community support. The Diagnosis The Ruehl family’s journey began when they noticed something was different with their daughter, Avery. She struggled with balance...
The National Ataxia Foundation (NAF) is breaking new ground in the world of Name, Image, and Likeness (NIL) partnerships. With a focus on raising awareness and funds for a rare neurodegenerative disease known as Ataxia.  Athletes from the University of Minnesota, Oklahoma State, Stanford, and the University of Miami have joined forces to support research...
In her illuminating piece, “About Brain Donation – Have You Ever Wondered?”, Mary Ann Peterson, NAF Research Associate, delves into the profound impact of brain donation in the fight against Ataxia. With touching insights from both donors and their families, as well as individuals directly affected by the disease, Peterson sheds light on the importance...
Life is a work in progress. Jeff Rich For me, Thanksgiving is not just a holiday but a cherished tradition, a time when the hustle and bustle of daily life takes a backseat to embrace the simple yet profound act of giving thanks. Everything about it, from the rich aroma of a roasting turkey and my...

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michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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