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Exercise
Most people don’t think twice about dexterity until it begins to fade. If you live with Ataxia, you may have noticed changes in your fine motor skills over time. Tasks like buttoning a shirt, typing, or even holding a cup of coffee now require more effort and focus.  So, what can you do to keep...
Originally published October 2019 Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPTTechnical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a neurologic disorder that affects people of all ages. People living with Ataxia may experience problems including incoordination of movement, slurred speech, poor balance, and gait abnormalities. Neuromotor exercises and...
Georg is on the erg 6 days a week Part 2 of 3 My life did not change with the diagnosis of Friedreich’s ataxia. All in all, this was just a letter informing me solely about the name of the genetic coding error. An error in the cells of my body that led to ‘living...
Where do you call home? Among the captivating stories that unfold here, the Story of Richard C Brown stands out. I live in a sleepy little Oxfordshire village in the UK. My Wife and I grew up nearby but lived and worked in Oxford and Birmingham before we moved back in 2013. Education – degree(s):...
Physical health is an essential part of our lives that impacts every other area, including our mental and emotional well-being. Physical wellness refers to your ability to maintain a healthy body through various means.  This can be accomplished through such activities as exercise, healthy eating habits, and avoiding harmful substances. It is critical to understand...

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michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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