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In the realm of managing movement disorders, telehealth has emerged as a crucial resource, particularly during the COVID-19 pandemic. Recent research indicates that over 60% of individuals living with Parkinson’s disease have embraced virtual visits with their physicians, marking a significant increase from previous usage rates. Beyond Parkinson’s disease, patients grappling with various movement disorders...
Population Estimate:  Fewer than 1000 people in the U.S. have this disease. Imagine waking up one day and finding it increasingly difficult to control your movements. Simple tasks like walking, writing, or even eating become monumental challenges.  This is the harsh reality for those living with ataxia, a group of neurological disorders that affect coordination...
You can read Lily’s previous article HERE.After taking the new medicine called Skyclarys for Friedreich’s Ataxia for a little over one month, I can share some updates and observations. Like the condition itself, these meds affect each patient differently, and our experiences all vary. I haven’t noticed any changes to my balance and coordination, two...
Does it ever feel like your brain is in a fog? Do you find it increasingly impossible to focus or concentrate? Are you constantly in a state of mental fatigue, with impaired memory and slow recall? If so, then you may be experiencing a condition known as brain fog. In this post, we’ll discuss what brain fog...
Hello! My name is Elise, I am a 34-year-old Canadian woman living on the Montreal South Shore. Also with me is my eight-year-old cat Kenji. I am a disabled freelance language professional: translating, editing, proofreading, beta-reading, I do it all, in both French and English! In my free time, I love reading, writing, and watching...
At age 16, I was diagnosed with a genetic neurological disorder called Friedreich’s Ataxia. I’d been experiencing symptoms since age 11 with no logical explanation up to then.  I staggered when I walked, I couldn’t carry a cup of water, and I dropped things a lot.  But little did I know that my body cells…….....
Living with a disability can feel like constantly adjusting to an unpredictable rhythm. One day, things might go smoothly, and the next, a slight movement or step can result in a fall that sends everything into chaos. For anyone with mobility challenges, the experience of falling is a constant companion. It impacts our physical well-being...
The human voice is the organ of the soul. Henry Wadsworth Longfellow Communication is an essential part of our human connection. It enables us to express our thoughts, emotions, and desires. However, for those of us in the Ataxia community, speaking can present a unique set of challenges. Some days, I wake up and my tongue feels 10...
In the first part of this article, I described some of the challenges I faced just before our world changed.  When Covid hit, I was still recovering from my injuries and deciding how to proceed with my career path.  Things were about to get dark. By the end of the lockdown, my physical injuries were...
Are you wondering where your income will come from in retirement? You may have a pension, a 401(k), or even an IRA or other personal savings. No matter your situation, however, Social Security is almost certainly going to be a part of your retirement income mix. Nearly 90 percent of all retirees rely on Social...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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