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Whether you think you can or you think you can’t—you’re right.–Henry Ford Something that has always echoed with me: if you believe something is possible, it probably is. And if you think it isn’t, you’re probably right about that too. It’s more than just a phrase—it’s a mindset that can influence how we approach life,...
Bill Nye, known for making science accessible, joins forces with the National Ataxia Foundation to spotlight Ataxia. This rare neurological condition disrupts coordination and balance, impacting tens of thousands worldwide.  This initiative, supported by “Good Morning America,” brings public attention to Ataxia’s symptoms, challenges, and the critical need for awareness and research.  Nye’s connection is...
Strength does not come from physical capacity. It comes from an indomitable will Mahatma Gandhi Living with a disability brings many challenges, but it also offers opportunities for growth, resilience, and hope. It is important to focus on the positives and find ways to adapt and thrive despite the difficulties. Understanding Disabilities Many different types...
In a heartfelt account shared by Jason Wolfer, we meet Chanda Huy, who is courageously navigating the challenges of a recent diagnosis of hereditary Spinocerebellar Ataxia.  Just a year ago, Chanda received this life-altering news, inherited from her father, which has profoundly impacted her daily life. Simple tasks that were once effortless for Chanda—like walking,...
Hey everyone, today I want to share the inspiring story of the Ruehl family and their journey with Ataxia.  Their story is a powerful reminder of resilience, hope, and the importance of community support. The Diagnosis The Ruehl family’s journey began when they noticed something was different with their daughter, Avery. She struggled with balance...
Today, I want to share an inspiring story that I recently came across on the Faces of Ataxia blog.  It’s about Jodie, a remarkable woman living with ataxia.  Her journey is one of resilience, determination, and a touch of humor, making it a must-read for anyone facing challenges in their own lives. Meet Jodie: A...
Breaunna Hoffman’s story is one of resilience and adaptation in the face of life-altering challenges. Diagnosed with Friedrich Ataxia at just fifteen years old, her world shifted dramatically.  Previously an active teenager involved in sports and cheer, she faced the reality of a neuromuscular disorder that would gradually change her life. Despite the initial devastation...
Sam Blade, a vibrant 25-year-old from Sydney and Melbourne, graciously shares his journey with Friedreich’s Ataxia (FA) in an interview with FARA Ambassador Dragana Obadic. Diagnosed at 15, Sam navigates the complexities of FA with resilience and determination, finding new passions and redefining his purpose along the way. Despite the challenges posed by FA, Sam...
Keep your face always toward the sunshine – and shadows will fall behind you. Walt Whitman Look up the definition of Ataxia and most of the time, the definition will be “a neurological condition that affects coordination, balance, and muscle control.”  But the world of ataxia is so much more complex.  Living with ataxia presents...
Step into my shoes and walk the life I’m living and if you get as far as I am……. just maybe, you will see how strong I really am. Unknown I’ve always liked this quote and more than ever, I feel it applies to my journey directly.  As if it were meant to happen, one...

My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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