In a heartwarming story shared by Jason Wolfer, we meet Mary Scheetz, a resilient individual living with Spinocerebellar Ataxia number Eight in Portland, Oregon.  Mary’s journey with Ataxia began over a decade ago, marked by a series of symptoms that gradually led to her diagnosis. Reflecting on her experience, Mary recalls the onset of food...
In a heartfelt account shared by Jason Wolfer, we meet Chanda Huy, who is courageously navigating the challenges of a recent diagnosis of hereditary Spinocerebellar Ataxia.  Just a year ago, Chanda received this life-altering news, inherited from her father, which has profoundly impacted her daily life. Simple tasks that were once effortless for Chanda—like walking,...
In a touching narrative shared by the National Ataxia Foundation, we meet the Ruehl family—Susan, Charlie, and Mary—as they courageously navigate the challenges of living with Ataxia. The journey begins with Susan’s recollection of noticing her children, Charlie and Mary, experiencing difficulties with balance and movement during their teenage years. Despite initial dismissals, Susan’s instincts...
In a touching narrative published on April 23, 2020, Jodie Kawa shares her journey with Spinocerebellar Ataxia type 2 (SCA2), shedding light on the impact of the disease on her life and the strength she finds in her community. Jodie’s awareness of Ataxia began at age ten when she learned of her mother’s diagnosis and...
Breaunna Hoffman’s story is one of resilience and adaptation in the face of life-altering challenges. Diagnosed with Friedrich Ataxia at just fifteen years old, her world shifted dramatically.  Previously an active teenager involved in sports and cheer, she faced the reality of a neuromuscular disorder that would gradually change her life. Despite the initial devastation...
Sam Blade, a vibrant 25-year-old from Sydney and Melbourne, graciously shares his journey with Friedreich’s Ataxia (FA) in an interview with FARA Ambassador Dragana Obadic. Diagnosed at 15, Sam navigates the complexities of FA with resilience and determination, finding new passions and redefining his purpose along the way. Despite the challenges posed by FA, Sam...
Jessica’s story is one of resilience and determination in the face of hereditary disease.  After learning about her 50% chance of inheriting Ataxia, she embarked on a journey that led her to in-vitro fertilization preimplantation genetic diagnosis (IVF PGD) to start a family free from the shadow of Ataxia.  Through IVF PGD, Jessica and her...
I’ve watched plenty of relationships having disagreements unfold in real life and on reality shows. Like a lot of people, I become an amateur family therapist in those moments. I quietly observe misinterpretations and miscommunications happening in real-time. Someone takes something the wrong way and responds in an angry tone, then the other person becomes defensive;...
Keep your face always toward the sunshine – and shadows will fall behind you. Walt Whitman Look up the definition of Ataxia and most of the time, the definition will be “a neurological condition that affects coordination, balance, and muscle control.”  But the world of ataxia is so much more complex.  Living with ataxia presents...
Step into my shoes and walk the life I’m living and if you get as far as I am……. just maybe, you will see how strong I really am. Unknown I’ve always liked this quote and more than ever, I feel it applies to my journey directly.  As if it were meant to happen, one...

My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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