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11 Exercises for Ataxia Patients

Michael MantzJanuary 17, 2024Ataxia Awareness, Resilient Voices

Originally published October 2019 Guest Authors: Sheng-Han Kuo MD, Chen-Ya Yang, MD, MPH, and Geraldine Yu, PT, DPTTechnical Support: Tiffany Chen BS, Johns Hopkins University Ataxia is a neurologic disorder that affects people of all ages. People living with Ataxia may experience problems including incoordination of movement, slurred speech, poor balance, and gait abnormalities. Neuromotor exercises and...

Advocating for Movement Disorder Patients: The Role of Policy

Michael MantzJanuary 6, 2024Ataxia Awareness, Resilient Voices

Movement disorders like Ataxia, Parkinson’s, and Huntington’s can significantly impact our daily lives, affecting everything from work to leisure activities. Recognizing the importance of wise policymaking in supporting these individuals, the Movement Disorder Policy Coalition is dedicated to uniting advocates to inform policies that prioritize access to treatment and patient-centered care. One critical area of...

Dispelling Myths About Ataxia: Insights from a Personal Journey

Michael MantzDecember 22, 2023Ataxia Awareness, Resilient Voices

Living with Ataxia comes with plenty of challenges, but one of the toughest hurdles is overcoming the misconceptions people have about the condition. I recently came across a blog post by Elise from Elisability titled Common Misconceptions About My Ataxia. Elise begins by addressing a myth many people with Ataxia encounter: mobility aids signify a...

Exploring Hope: The Potential of Gene-Editing Treatments for Ataxia

Michael MantzDecember 13, 2023Ataxia Awareness, Research and Development

Recent News: FDA approves first gene-editing treatment for human illness In the vast landscape of medical advancements, hope is a powerful force. Disclaimer: I wrote this article after I read the above story about Sickle Cell. Please do your own research and talk to your medical professional about the possibilities for other conditions like Ataxia....

Revolutionizing Ataxia Management: The Apple Watch Benefits

Michael MantzDecember 9, 2023Ataxia Awareness, Resilient Voices

The advance of technology is based on making it fit in so that you don’t really even notice it, so it’s part of everyday life. Bill Gates Living with a neurological condition like ataxia can be challenging, as it affects coordination, balance, and muscle control. However, advancements in technology have introduced innovative solutions that can...

Unveiling the Journey: Living with Episodic Ataxia

Michael MantzDecember 4, 2023Ataxia Awareness, Resilient Voices

Often misdiagnosed, misunderstood, and unseen. A sufferer writes of a silver lining in his tale of swoon and gloom. Timothy Wahl In this compelling narrative, Tim Wahl shares his poignant journey with Episodic Ataxia, a hidden impairment that dramatically altered the course of his life. From the innocence of childhood to the challenges of adulthood,...

Introducing Paola Coto

Michael MantzNovember 16, 2023Ataxia Awareness, Resilient Voices

I translated this article from the Spanish version.: READ HERE Paola Coto’s life changed starting in December 2022. She received a diagnosis of cerebellar ataxia at the age of 50. This stands as one of the rare diseases in the world. Only 5 out of every 100,000 people suffer from it. A lack of coordination...

Ataxia and Humidity - Michaelmantz ataxia Blogs

Exploring the Connection Between Ataxia and Humidity Flare-Ups

Michael MantzSeptember 22, 2023Ataxia Awareness, Resilient Voices

Imagine a world where the simple act of walking, balancing, or coordinating your movements becomes a daily struggle.Learning to live with a progressive condition is a harsh reality. As I get older, simple things that I used to take for granted are becoming more and more difficult. I know everyone with Ataxia and other movement disorders...

Understanding Ataxia SCA 15

Michael MantzSeptember 5, 2023Ataxia Awareness, My Story

Population Estimate: Fewer than 1000 people in the U.S. have this disease. Imagine waking up one day and finding it increasingly difficult to control your movements. Simple tasks like walking, writing, or even eating become monumental challenges. This is the harsh reality for those living with ataxia, a group of neurological disorders that affect coordination...

High Highs to Low Lows (Skyclarys Medicine One Month Update)

Lily PierceAugust 31, 2023Ataxia Awareness, Resilient Voices

You can read Lily’s previous article HERE.After taking the new medicine called Skyclarys for Friedreich’s Ataxia for a little over one month, I can share some updates and observations. Like the condition itself, these meds affect each patient differently, and our experiences all vary. I haven’t noticed any changes to my balance and coordination, two...