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Coordination
Bill Nye, known for making science accessible, joins forces with the National Ataxia Foundation to spotlight Ataxia. This rare neurological condition disrupts coordination and balance, impacting tens of thousands worldwide.  This initiative, supported by “Good Morning America,” brings public attention to Ataxia’s symptoms, challenges, and the critical need for awareness and research.  Nye’s connection is...
Sometimes the most honest answer is, ‘I’m doing the best I can,’ and that’s more than enough. It’s a simple question: “How are you doing?” But when someone asks you this after you haven’t seen them for a while, especially when you’re living with a condition like Ataxia, it can feel like a loaded one....
Life is made up of a bunch of little moments, each with its special meaning.  But when we step back, we see how those small actions can make a big difference.  Just like throwing a pebble in a pond, our actions can create waves that affect way more than just us. We all want to...
“Can an ancient practice like acupuncture make a difference for modern neurological conditions like Ataxia?” Acupuncture has been around for thousands of years and is a key part of traditional Chinese medicine. In recent years, it has gained recognition in the modern world as a valuable therapy. This practice has been used to treat pain...
Raising awareness is the first step toward change. Together, we can bring hope, inspire action, and create a world where Ataxia no longer limits lives. What is Ataxia Awareness Day? Ataxia Awareness Day, September 25th, is a global event to raise awareness about Ataxia, a group of neurological disorders affecting coordination, balance, and speech. This...
CITGO has again shown its commitment to community and health by Fundraising over $2.9 million for the Muscular Dystrophy Association (MDA).   This incredible achievement reflects CITGO’s dedication to improving the lives of those affected by neuromuscular diseases. While this effort is focused on muscular dystrophy, the impact of such fundraising goes beyond a single...
Success is not final, failure is not fatal: It is the courage to continue that counts. Winston Churchill Living with Ataxia is tough and can often feel overwhelming. The physical limitations, the unpredictability of symptoms, and the emotional toll can make even the simplest tasks seem frightening.  But here’s the thing……. how you approach these challenges...
Prepare for an exciting and impactful event—Ataxia Advocacy Day 2024 on September 25th! This event is a fantastic opportunity for us to unite, raise our voices, and advocate for those affected by Ataxia. What’s Happening on Advocacy Day? Ataxia Advocacy Day 2024 is about making our voices heard on Capitol Hill.  You can meet with...
I just read some exciting news about lupus. Although this story is unrelated to Ataxia or movement, I think news like this could be critical to the future of our treatments.  Scientists have made a groundbreaking discovery, pinpointing what could be the root cause of this challenging autoimmune disease.  Let’s look at the details and...
Right shoes take you good places Shoes have always been important to me.  I remember begging my parents for the newest and “coolest” styles, mainly basketball shoes.  I know I am not the only one – almost everyone has gone through the same routine at some point.  As my Ataxia has progressed, I have searched...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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