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At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...
Fatigue is the shadow of ataxia, but within that shadow, we can discover the strength to shine. Living with ataxia, a neurological disorder that impairs movement and coordination, comes with special difficulties that go beyond physical symptoms.  Constant fatigue is one of the most common and confusing symptoms that people with ataxia face.  It’s important to...
Hey everyone, let’s explore a confusing topic: sugars. Not all sugars are created equal, and understanding the differences can help us make better health choices. Natural Sugars Natural sugars in whole foods like fruits, dairy products, and vegetables are packaged with fiber, vitamins, and minerals. This combination slows down digestion, preventing blood sugar spikes and...
Today, I want to share an inspiring story that I recently came across on the Faces of Ataxia blog.  It’s about Jodie, a remarkable woman living with ataxia.  Her journey is one of resilience, determination, and a touch of humor, making it a must-read for anyone facing challenges in their own lives. Meet Jodie: A...
Rare Disease Day: An Insight into SDG Resources and Global Awareness Initiatives Rare Disease Day is an annual global event that brings attention to rare diseases and the millions of people affected by them. It is held on the last day of February, with the primary aim of raising awareness among the general public, healthcare...
The National Ataxia Foundation (NAF) is breaking new ground in the world of Name, Image, and Likeness (NIL) partnerships. With a focus on raising awareness and funds for a rare neurodegenerative disease known as Ataxia.  Athletes from the University of Minnesota, Oklahoma State, Stanford, and the University of Miami have joined forces to support research...
Life gives you plenty of time to do whatever you want to do if you stay in the present moment. Deepak Chopra Life’s had some challenges for me in the past couple of months.  However, even with everything, I am more excited about the future than I have been in a while.  So, the theme...
Let’s meet Krystal Schulze, whose journey with Ataxia took an unexpected turn due to a brain tumor. Discovered during her high school years.  Krystal shares her courageous story of resilience and adaptation as she navigates life with Acquired Cerebellar Ataxia (ACA). Diagnosed at the age of 18, Krystal’s life took a drastic turn as she...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
You can’t pour from an empty cup. Take care of yourself first.  We all have a lot going on, right?  Work, family, friends, and a million other things.  It’s easy to forget about ourselves amid all that chaos.  But taking care of yourself is super important.  It’s not just about feeling good physically and mentally;...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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