Tag

Balance
Living with ataxia presents a multitude of challenges beyond the physical realm, often overshadowed by the visible symptoms. In this candid narrative, Kate shares her profound impact of ataxia on mental health, shedding light on a facet of the condition that is frequently overlooked. The journey begins with the onset of symptoms during university years,...
Lily shares the lessons she’s learned from living with a disability. She discusses the challenges of physical limitations and the surprising wisdom and perspective she’s gained. Lily’s story is one of resilience, humility, and a commitment to personal growth. It reminds us that we can all learn by listening to others with similar stories. Lesson...
Life is a work in progress. Jeff Rich For me, Thanksgiving is not just a holiday but a cherished tradition, a time when the hustle and bustle of daily life takes a backseat to embrace the simple yet profound act of giving thanks. Everything about it, from the rich aroma of a roasting turkey and my...
I translated this article from the Spanish version.:  READ HERE Paola Coto’s life changed starting in December 2022. She received a diagnosis of cerebellar ataxia at the age of 50. This stands as one of the rare diseases in the world. Only 5 out of every 100,000 people suffer from it. A lack of coordination...
Why do people always talk about eating more fruits and veggies? It’s not just about getting your vitamins or loading up on fiber—there’s a more significant reason that doesn’t get talked about enough. There’s this amazing system inside you called the buffer system that quietly works to keep everything in check. Believe it or not,...
Aging is a part of life, but how we handle it makes all the difference. Staying healthy, happy, and mentally sharp as the years go by starts with how we care for ourselves. It’s not just about avoiding wrinkles or aches—it’s about feeling good and living fully. So, what’s the trick to staying sharp and...
We pressure ourselves to fit into a particular ideal and be able to do certain things. For each of us, the standards vary. For the highly athletic person, perhaps it’s running X miles a day. For the average person who exercises, it may be the ability to lift X pounds on certain machines. For a NON-gym...
In the realm of managing movement disorders, telehealth has emerged as a crucial resource, particularly during the COVID-19 pandemic. Recent research indicates that over 60% of individuals living with Parkinson’s disease have embraced virtual visits with their physicians, marking a significant increase from previous usage rates. Beyond Parkinson’s disease, patients grappling with various movement disorders...
You can read Lily’s previous article HERE.After taking the new medicine called Skyclarys for Friedreich’s Ataxia for a little over one month, I can share some updates and observations. Like the condition itself, these meds affect each patient differently, and our experiences all vary. I haven’t noticed any changes to my balance and coordination, two...
Fueling your body with the right foods isn’t just a choice – it’s a powerful tool in your journey to living with the challenges of ataxia. By embracing a diet rich in complex carbohydrates, lean proteins, healthy fats, and vibrant fruits and vegetables, you’re not only nourishing your body but also unlocking a natural source...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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