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Resilient Voices
Adam Carter’s life took an unexpected turn when he was diagnosed with Spinocerebellar Ataxia type four at the age of 23.  Despite growing up with a love for soccer, cricket, rap music, and breakdancing, Adam found himself facing a rare neurological disease that threatened to strip away his passions. Initially resistant to acknowledging his condition,...
Living with Ataxia comes with plenty of challenges, but one of the toughest hurdles is overcoming the misconceptions people have about the condition. I recently came across a blog post by Elise from Elisability titled Common Misconceptions About My Ataxia. Elise begins by addressing a myth many people with Ataxia encounter: mobility aids signify a...
Living with ataxia presents a multitude of challenges beyond the physical realm, often overshadowed by the visible symptoms. In this candid narrative, Kate shares her profound impact of ataxia on mental health, shedding light on a facet of the condition that is frequently overlooked. The journey begins with the onset of symptoms during university years,...
The advance of technology is based on making it fit in so that you don’t really even notice it, so it’s part of everyday life. Bill Gates Living with a neurological condition like ataxia can be challenging, as it affects coordination, balance, and muscle control. However, advancements in technology have introduced innovative solutions that can...
Often misdiagnosed, misunderstood, and unseen. A sufferer writes of a silver lining in his tale of swoon and gloom. Timothy Wahl In this compelling narrative, Tim Wahl shares his poignant journey with Episodic Ataxia, a hidden impairment that dramatically altered the course of his life.  From the innocence of childhood to the challenges of adulthood,...
Lily shares the lessons she’s learned from living with a disability. She discusses the challenges of physical limitations and the surprising wisdom and perspective she’s gained. Lily’s story is one of resilience, humility, and a commitment to personal growth. It reminds us that we can all learn by listening to others with similar stories. Lesson...
This a poem I wrote for Brian Oliveira my husband who passed away from complications associated with Spinocerebellar Ataxia Type 3 (SCA3).  Dedicated to Brian OliveiraWritten by Sari Oliveira. Imagine for a second what it would be like:Just to live? Imagine having your entire life where living was exhausting?But you still showed up and did...
I translated this article from the Spanish version.:  READ HERE Paola Coto’s life changed starting in December 2022. She received a diagnosis of cerebellar ataxia at the age of 50. This stands as one of the rare diseases in the world. Only 5 out of every 100,000 people suffer from it. A lack of coordination...
Lisa Antonelli Cole’s journey to an ataxia diagnosis was marked by years of misdiagnosis and frustration.  After experiencing symptoms such as dizziness, lack of coordination, and imbalance for years, Lisa underwent a series of medical appointments, only to be dismissed with treatments for vertigo and chronic anxiety. It wasn’t until a cardiologist recommended she see...
How it had started? As far as I can remember, I have always had trouble with my health. During my childhood, I had to go to the hospital frequently. I am Anoushka Speville, I am 28 years old and I come from Rodrigues Island, Mauritius(I know that it is not well known, but Rodrigues Island...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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