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Resilient Voices
This site is about building Ataxia Awareness and one of the many types is Gluten Ataxia. Please consult a doctor if you feel like you may have this condition. Gluten ataxia is a progressive condition, which means that symptoms may start off mild and almost unnoticed, and gradually progress to being debilitating. In recent years, there...
Darcy’s story is a powerful reminder that even with a rare condition like CACNA1A mutation-related ataxia, you can still live a full and meaningful life. She inspires everyone by showing us that resilience, adaptation, and raising awareness are key to overcoming challenges. Discovering the Diagnosis Darcy’s journey to a diagnosis was a long and bumpy...
We pressure ourselves to fit into a particular ideal and be able to do certain things. For each of us, the standards vary. For the highly athletic person, perhaps it’s running X miles a day. For the average person who exercises, it may be the ability to lift X pounds on certain machines. For a NON-gym...
Imagine a world where the simple act of walking, balancing, or coordinating your movements becomes a daily struggle.Learning to live with a progressive condition is a harsh reality. As I get older, simple things that I used to take for granted are becoming more and more difficult. I know everyone with Ataxia and other movement disorders...
Megan’s story is a true inspiration. She’s faced many challenges living with type 1 ataxia, a progressive neurological condition, but she’s never given up. She’s shown incredible strength, perseverance, and hope. Discovering the Diagnosis Megan’s story started with subtle symptoms that most people would ignore.  Like many people with Ataxia, her balance and coordination problems...
You can read Lily’s previous article HERE.After taking the new medicine called Skyclarys for Friedreich’s Ataxia for a little over one month, I can share some updates and observations. Like the condition itself, these meds affect each patient differently, and our experiences all vary. I haven’t noticed any changes to my balance and coordination, two...
Hi, friends. For those who struggle with standing, balancing, or walking due to illness and/or old age, daily minutiae can become a huge burden once the leg and hip muscles atrophy. Using the toilet, taking a shower, simply getting from point A to point B–every little obstacle is a mountain. While the progression of time or disease...
Getting a new diagnosis, especially one that brings life-changing challenges, can feel like you’re stepping into a world you didn’t choose.  It’s overwhelming and confusing, and you’re likely flooded with questions.  How will this impact your future?  What will it mean for your relationships, dreams, and future?  While every diagnosis journey is unique, the feelings...
Living with Ataxia isn’t easy, and no one knows this better than Martha Harlam.  Diagnosed with this progressive neurological disorder in 1988 at the age of 38, Martha’s life took a drastic turn. Now, at 69, she reflects on the challenges, losses, and unexpected blessings that have shaped her journey over the years. Martha’s story...
Hello! My name is Elise, I am a 34-year-old Canadian woman living on the Montreal South Shore. Also with me is my eight-year-old cat Kenji. I am a disabled freelance language professional: translating, editing, proofreading, beta-reading, I do it all, in both French and English! In my free time, I love reading, writing, and watching...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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