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Ataxia
I wrote this article after reading a statement posted in an Ataxia group, “I hate that the simplest tasks take so much energy.”  I feel this statement applies to everyone and I welcome your comments and reactions.  Everyone’s journey is different, and your comments could help someone in a similar situation. All of us with...
Movement disorders like Ataxia, Parkinson’s, and Huntington’s can significantly impact our daily lives, affecting everything from work to leisure activities.  Recognizing the importance of wise policymaking in supporting these individuals, the Movement Disorder Policy Coalition is dedicated to uniting advocates to inform policies that prioritize access to treatment and patient-centered care. One critical area of...
Allow yourself to be proud of your story.  And all the progress you have made this year.  Especially the unseen progress that no one else can see. It’s simple to miss the small successes among the chaos of life’s demands and the rush to live up to expectations from others.  The advancements we make that,...
Zoyeb Mohamed Zia’s life took a drastic turn when he was diagnosed with Ataxia during high school. Despite the initial challenges and uncertainty surrounding his condition, Zoyeb’s resilience and determination propelled him forward. Supported by his family, he pursued his education. And is now working as an Assistant Professor of Zoology, with plans to start...
Adam Carter’s life took an unexpected turn when he was diagnosed with Spinocerebellar Ataxia type four at the age of 23.  Despite growing up with a love for soccer, cricket, rap music, and breakdancing, Adam found himself facing a rare neurological disease that threatened to strip away his passions. Initially resistant to acknowledging his condition,...
Living with Ataxia comes with plenty of challenges, but one of the toughest hurdles is overcoming the misconceptions people have about the condition. I recently came across a blog post by Elise from Elisability titled Common Misconceptions About My Ataxia. Elise begins by addressing a myth many people with Ataxia encounter: mobility aids signify a...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
You can’t pour from an empty cup. Take care of yourself first.  We all have a lot going on, right?  Work, family, friends, and a million other things.  It’s easy to forget about ourselves amid all that chaos.  But taking care of yourself is super important.  It’s not just about feeling good physically and mentally;...
Recent News:  FDA approves first gene-editing treatment for human illness In the vast landscape of medical advancements, hope is a powerful force. Disclaimer:  I wrote this article after I read the above story about Sickle Cell.  Please do your own research and talk to your medical professional about the possibilities for other conditions like Ataxia....
Living with ataxia presents a multitude of challenges beyond the physical realm, often overshadowed by the visible symptoms. In this candid narrative, Kate shares her profound impact of ataxia on mental health, shedding light on a facet of the condition that is frequently overlooked. The journey begins with the onset of symptoms during university years,...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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