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Movement
Let’s meet Krystal Schulze, whose journey with Ataxia took an unexpected turn due to a brain tumor. Discovered during her high school years.  Krystal shares her courageous story of resilience and adaptation as she navigates life with Acquired Cerebellar Ataxia (ACA). Diagnosed at the age of 18, Krystal’s life took a drastic turn as she...
I wrote this article after reading a statement posted in an Ataxia group, “I hate that the simplest tasks take so much energy.”  I feel this statement applies to everyone and I welcome your comments and reactions.  Everyone’s journey is different, and your comments could help someone in a similar situation. All of us with...
Movement disorders like Ataxia, Parkinson’s, and Huntington’s can significantly impact our daily lives, affecting everything from work to leisure activities.  Recognizing the importance of wise policymaking in supporting these individuals, the Movement Disorder Policy Coalition is dedicated to uniting advocates to inform policies that prioritize access to treatment and patient-centered care. One critical area of...
Zoyeb Mohamed Zia’s life took a drastic turn when he was diagnosed with Ataxia during high school. Despite the initial challenges and uncertainty surrounding his condition, Zoyeb’s resilience and determination propelled him forward. Supported by his family, he pursued his education. And is now working as an Assistant Professor of Zoology, with plans to start...
Adam Carter’s life took an unexpected turn when he was diagnosed with Spinocerebellar Ataxia type four at the age of 23.  Despite growing up with a love for soccer, cricket, rap music, and breakdancing, Adam found himself facing a rare neurological disease that threatened to strip away his passions. Initially resistant to acknowledging his condition,...
Living with Ataxia comes with plenty of challenges, but one of the toughest hurdles is overcoming the misconceptions people have about the condition. I recently came across a blog post by Elise from Elisability titled Common Misconceptions About My Ataxia. Elise begins by addressing a myth many people with Ataxia encounter: mobility aids signify a...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
The advance of technology is based on making it fit in so that you don’t really even notice it, so it’s part of everyday life. Bill Gates Living with a neurological condition like ataxia can be challenging, as it affects coordination, balance, and muscle control. However, advancements in technology have introduced innovative solutions that can...
Whatever you do you have to keep moving forward. Martin Luther King In my world, life is a continuous journey of change.  I get it.  Change can be scary, and most folks would do just about anything to avoid it.  However, I firmly believe that real personal growth and discovering who you truly are require...
Lily shares the lessons she’s learned from living with a disability. She discusses the challenges of physical limitations and the surprising wisdom and perspective she’s gained. Lily’s story is one of resilience, humility, and a commitment to personal growth. It reminds us that we can all learn by listening to others with similar stories. Lesson...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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