By

Richard C Brown MBE
Life is about accepting the challenges along the way, choosing to keep moving forward, and savoring the journey Roy T. Bennett When we moved to our ‘forever’ home in 2013, we extended it to add a master bedroom with an ensuite wet room. We future-proofed the bedroom by including a strengthened ceiling to accommodate a...
Having a successful, traditional career was always one of my measures of success. My diagnosis with Friedreich’s Ataxia (a progressive and incurable neurological condition) at 15 shook this, but my time at University gave me the confidence to continue. My 10-year career in Local Government was rewarding and exciting, but there were heavy sacrifices. I...
Support dog are life-changing for disabled people lucky enough to have one – not just in the way most people think. Every year, for the last five years, I have led the ‘All About Ataxia’ workshop for newly diagnosed people at Ataxia UK’s National Conference. Amongst other things, we talk about support networks, and who...
Our kids are 10 and 5 this month. This is an update of a piece I wrote on how we made the difficult choice to become parents. My Wife and I had always wanted to have children together, we’d just never agreed exactly when. Parenthood is not for everyone, but having a family life is a...
After I was diagnosed with Friedreich’s Ataxia at fifteen, I swore, and really believed, I would take my own life before using one. What triggered this reaction and what changed my mind? I grew up in the eighties, unaware of disability. In my family, my cousin was born with a harelip and cleft palette, but...
After 25 years of living with a slowly progressive neurological condition, I came to the realization that I needed a reliable and more powerful means of getting around. In the home, I was okay, but I had to rely on others to do anything outside the house. Just moving around in my wheelchair or trike...
Part of my coping mechanism has always been to remember the great number of people who are experiencing much worse than I am – ‘It could be worse’ ‘keep a stiff upper lip’ or keep calm and carry on’. Now I realize that minimizing the physical realities of living with a disability in this way...
An opera singer from ataxia UK takes to the stage. She steps out into the spotlight, she has worked hard, made sacrifices, and learned. THIS is her moment – everything has built to this. She takes a deep breath as she opens her arms wide. Then the lights go out and the curtain falls! That...
Where do you call home? Among the captivating stories that unfold here, the Story of Richard C Brown stands out. I live in a sleepy little Oxfordshire village in the UK. My Wife and I grew up nearby but lived and worked in Oxford and Birmingham before we moved back in 2013. Education – degree(s):...

My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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