Category

Resilient Voices
Walking shouldn’t require concentration. Your body should handle it in the background without asking for your opinion. Mine has follow-up questions. Not out loud. Nobody ever asks. But I can see it: the look and the recalculation, as they decide that something is going on here and needs an explanation. So let me help you...
A field guide to the well-meaning things people say when they’re trying to help There’s a moment that happens when you tell someone about your diagnosis. You can almost see it – the quick calculation behind their eyes as they figure out what to say next. Most people land somewhere kind. Some land somewhere memorable....
There’s a moment, somewhere between the kitchen and the hallway, where I catch myself paying attention to how I’m walking. Not because anything dramatic happened. Just a slight shift, a half-second of recalibration, and suddenly I’m aware of my feet in a way most people never are. It happens in my own house. A place...
Balance is one of those things you never really think about. Walking across a parking lot, stepping off a curb, and moving through a crowd… your body just handles it. Thousands of little adjustments are happening every minute, and they stay completely in the background. You don’t notice them because, honestly, you’ve never had a...
When “Stop Worrying” Doesn’t Help Most advice about overthinking starts from the same assumption. That you’re worried about something that probably won’t happen. Or that your brain is jumping ahead for no good reason. You’re told to stay present, let go of hypothetical outcomes, and focus on what’s actually in front of you. And sometimes,...
There are days when nothing obvious has changed. You slept fine. Your symptoms feel about the same as usual. And yet your balance is just a little less reliable. You misjudge a step or reach for something, and it takes a second longer than it should. Walking across the room takes slightly more effort than...
There’s a moment after a major life change – injury, illness, relocation, relationships, career changes – when something feels like it disappeared. Not paused, not adapting, just gone. It doesn’t arrive dramatically. It shows up in quiet sentences: “I’m not that person anymore.”“That chapter’s over.”“I can’t do that the way I used to.” Over time,...
Why “What Works” Is Misleading With Ataxia and Neurological Conditions One of the most confusing parts of living with ataxia and similar neurological conditions is how often the same advice produces completely opposite results. Something that genuinely helps one person can quietly wreck another. Sleep medications are a common example. Supplements too. So are routines,...
Every once in a while, someone in this community puts words to a feeling many of us carry but rarely articulate. Franke James is one of those people. Franke is a writer and author who also lives with idiopathic ataxia. When she shared this piece with me, it stayed with me. Not because it softens...
Neurological conditions: why sleep meds, supplements, and routines make “what works” a misleading question. Neurological conditions like ataxia make daily life unpredictable, especially when the same advice produces completely opposite results. Something that genuinely helps one person can quietly wreck another. Sleep meds are a good example. Supplements too. Routines, workouts, even lifestyle changes that...
1 2 3 4 5 … 16

My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

More About Me

Follow Us



Follow this Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.

Popular Post

apple watch - ataxia
Revolutionizing Ataxia Management: The Apple Watch Benefits
December 9, 2023
Degenerative Neurological Disease
You degenerate, you!
March 8, 2025
Cerebellar Ataxia - MIchaelmantz ataxia blogs
Introducing Anoushka Speville
October 10, 2023

Recent Post

Ataxia and Swallowing Difficulties, ,
Choking on Water: When Ataxia Affects Swallowing
November 10, 2026
Invisible Disabilities Week, ,
What You See Isn’t Always What Someone Is Living With
October 22, 2026
AQNEURSA FDA approval ataxia, ,
A Win for A-T Isn’t a Win for SCA15, But It Still Matters
October 6, 2026

My New Stories

Ataxia and Swallowing Difficulties
Invisible Disabilities Week
AQNEURSA FDA approval ataxia
International Ataxia Awareness Day
REM sleep behavior disorder vs sleepwalking
Gyropack for ataxia
occupational therapy for ataxia
Friedreich's ataxia research