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Acupuncture:  proof that stabbing someone can make things better. Robert Southey Living with ataxia, a neurological disorder that affects coordination and balance, can be a daunting and challenging journey. However, among the various treatments available, acupuncture has emerged as a promising therapeutic option for managing the symptoms of ataxia. This ancient Chinese practice, rooted in...
Where do you call home? Among the captivating stories that unfold here, the Story of Richard C Brown stands out. I live in a sleepy little Oxfordshire village in the UK. My Wife and I grew up nearby but lived and worked in Oxford and Birmingham before we moved back in 2013. Education – degree(s):...
Part 1 of 3A couple of years ago I was diagnosed with a rare neurological disease called Friedreich’s Ataxia (FA). This diagnosis changed my life significantly, my name is Georg Herdt and this is my life story FA is a rare, inherited, neurological disease that causes progressive nervous system damage and movement problems. People with...
Dr. Georg Herdt, he’s back and talking about the importance of communities in sport. The Benefits of Sports Facilities Why does one exercise? For me, as a person with a significant and life-threatening condition, the benefits of doing sport are obvious. But here, for once, I don’t want to write about why I think sport...
What do you want to discuss? The effect of rowing (intense exercise) on FA Original MTC: curefa.org/meet-the-community/dr-georg-herdt Name: Dr. Georg Herdt Where do you call home? Oxford, UK Education: PhD in Architecture Some background:  I’ve been living with the knowledge of having FA for almost eight years now. One might think I got used to this life and I should...
“It doesn’t matter how old a son is. Even when he is big and strong, he is always a small boy for his mother.” Unknown Imagine being a parent and getting this news from your son.  I can’t remember the exact words that he said, but what I do remember is the word “Ataxia.” My...
In today’s modern world, where advanced medical treatments dominate the healthcare landscape, it’s easy to overlook the age-old wisdom and practices that have stood the test of time. Among these enduring traditions is acupuncture, a therapeutic technique rooted in Chinese medicine that has been practiced for thousands of years. While its effectiveness has often been...
Have you ever experienced uncontrollable head tremors? The kind that shakes your world and leaves you wondering if this will ever end. I’m almost positive this is not an issue or thought, for most people reading this. And Head Tremors might not even be an issue for most in our Ataxia community. But for me, this is...
Keep your face always toward the sunshine – and shadows will fall behind you. Walt Whitman Look up the definition of Ataxia and most of the time, the definition will be “a neurological condition that affects coordination, balance, and muscle control.”  But the world of ataxia is so much more complex.  Living with ataxia presents...
Are seasonal allergies overpowering you?  Does it feel like this spring has been worse than in past years?  For me personally, the past couple of weeks have been miserable. Congested sinuses, sore throat, burning chest, watery eyes, and constantly, blowing my nose. I cannot remember the last time that seasonal allergies had such a strong effect...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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