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Movement
Just because I carry it well, doesn’t mean it isn’t heavy. Living with ataxia is like walking around with a secret.  People see you on the outside and think you’re fine, but on the inside………there are many hidden challenges of living with Ataxia!  It’s tough when people make assumptions and don’t understand what you’re going...
Bill Nye, known for making science accessible, joins forces with the National Ataxia Foundation to spotlight Ataxia. This rare neurological condition disrupts coordination and balance, impacting tens of thousands worldwide.  This initiative, supported by “Good Morning America,” brings public attention to Ataxia’s symptoms, challenges, and the critical need for awareness and research.  Nye’s connection is...
Sometimes the most honest answer is, ‘I’m doing the best I can,’ and that’s more than enough. It’s a simple question: “How are you doing?” But when someone asks you this after you haven’t seen them for a while, especially when you’re living with a condition like Ataxia, it can feel like a loaded one....
I just read a great article on PR Newswire, and it could be an exciting opportunity.  But please, talk to your own medical professional about your options.  Disclaimer: This article is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare professional...
Catherine Meredith’s life took an unexpected turn when she was diagnosed with Ataxia at the age of forty-nine, during her fifth year as a fourth-grade school teacher.  Initially dismissing her symptoms as minor issues like a sore knee, Catherine’s journey with Ataxia began to unfold when she started experiencing difficulties with speech and walking. Despite...
CITGO has again shown its commitment to community and health by Fundraising over $2.9 million for the Muscular Dystrophy Association (MDA).   This incredible achievement reflects CITGO’s dedication to improving the lives of those affected by neuromuscular diseases. While this effort is focused on muscular dystrophy, the impact of such fundraising goes beyond a single...
Success is not final, failure is not fatal: It is the courage to continue that counts. Winston Churchill Living with Ataxia is tough and can often feel overwhelming. The physical limitations, the unpredictability of symptoms, and the emotional toll can make even the simplest tasks seem frightening.  But here’s the thing……. how you approach these challenges...
I recently read an interesting article about how our diet can significantly impact brain health. It explored the benefits of anti-inflammatory foods and ketogenic diets, as well as the Mediterranean diet’s role in supporting cognitive function.   Disclaimer: This article is for general information and educational purposes only. It neither provides any medical advice nor intends...
Prepare for an exciting and impactful event—Ataxia Advocacy Day 2024 on September 25th! This event is a fantastic opportunity for us to unite, raise our voices, and advocate for those affected by Ataxia. What’s Happening on Advocacy Day? Ataxia Advocacy Day 2024 is about making our voices heard on Capitol Hill.  You can meet with...
I have some fantastic news to share with you today. At MichaelMantz.com, we constantly strive to provide the best content and resources to help you stay informed and empowered about overall health and Ataxia awareness. I’m excited to share our recent changes and additions to our website with you. Let’s dive into the details! Introducing...
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michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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