Tag

Balance
Where do you call home? Among the captivating stories that unfold here, the Story of Richard C Brown stands out. I live in a sleepy little Oxfordshire village in the UK. My Wife and I grew up nearby but lived and worked in Oxford and Birmingham before we moved back in 2013. Education – degree(s):...
Part 1 of 3A couple of years ago I was diagnosed with a rare neurological disease called Friedreich’s Ataxia (FA). This diagnosis changed my life significantly, my name is Georg Herdt and this is my life story FA is a rare, inherited, neurological disease that causes progressive nervous system damage and movement problems. People with...
Take a moment throughout your day to focus on your breathing. Follow the inhale completely and smile through the exhale. Even a few minutes of mindful breathing can bring you peace. Barrie Davenport The Transformative Power of Mindful Breathing and Meditation Isn’t it all too easy to get swept up in a sea of responsibilities,...
Dr. Georg Herdt, he’s back and talking about the importance of communities in sport. The Benefits of Sports Facilities Why does one exercise? For me, as a person with a significant and life-threatening condition, the benefits of doing sport are obvious. But here, for once, I don’t want to write about why I think sport...
What do you want to discuss? The effect of rowing (intense exercise) on FA Original MTC: curefa.org/meet-the-community/dr-georg-herdt Name: Dr. Georg Herdt Where do you call home? Oxford, UK Education: PhD in Architecture Some background:  I’ve been living with the knowledge of having FA for almost eight years now. One might think I got used to this life and I should...
“It doesn’t matter how old a son is. Even when he is big and strong, he is always a small boy for his mother.” Unknown Imagine being a parent and getting this news from your son.  I can’t remember the exact words that he said, but what I do remember is the word “Ataxia.” My...
In today’s modern world, where advanced medical treatments dominate the healthcare landscape, it’s easy to overlook the age-old wisdom and practices that have stood the test of time. Among these enduring traditions is acupuncture, a therapeutic technique rooted in Chinese medicine that has been practiced for thousands of years. While its effectiveness has often been...
Have you ever experienced uncontrollable head tremors? The kind that shakes your world and leaves you wondering if this will ever end. I’m almost positive this is not an issue or thought, for most people reading this. And Head Tremors might not even be an issue for most in our Ataxia community. But for me, this is...
Keep your face always toward the sunshine – and shadows will fall behind you. Walt Whitman Look up the definition of Ataxia and most of the time, the definition will be “a neurological condition that affects coordination, balance, and muscle control.”  But the world of ataxia is so much more complex.  Living with ataxia presents...
In the first part of this article, I described some of the challenges I faced just before our world changed.  When Covid hit, I was still recovering from my injuries and deciding how to proceed with my career path.  Things were about to get dark. By the end of the lockdown, my physical injuries were...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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