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Ataxia
Population Estimate:  Fewer than 1000 people in the U.S. have this disease. Imagine waking up one day and finding it increasingly difficult to control your movements. Simple tasks like walking, writing, or even eating become monumental challenges.  This is the harsh reality for those living with ataxia, a group of neurological disorders that affect coordination...
You can read Lily’s previous article HERE.After taking the new medicine called Skyclarys for Friedreich’s Ataxia for a little over one month, I can share some updates and observations. Like the condition itself, these meds affect each patient differently, and our experiences all vary. I haven’t noticed any changes to my balance and coordination, two...
Fueling your body with the right foods isn’t just a choice – it’s a powerful tool in your journey to living with the challenges of ataxia. By embracing a diet rich in complex carbohydrates, lean proteins, healthy fats, and vibrant fruits and vegetables, you’re not only nourishing your body but also unlocking a natural source...
Through the rhythm of music, we find a bridge that unites the discord of ataxia, guiding every step towards harmony and newfound freedom. Unknown The human body’s ability to move seamlessly is a gift often taken for granted. However, even simple movements can be difficult for those of us with movement problems like Ataxia. Ataxia refers to...
Marth’s website:  https://miracle-answer.org/a-cure/ and Post Published: December 12, 2022Ataxia is a neurological condition that occurs in children and adults. In fact, 26 out of 100,000 children are afflicted with this condition. Despite this high prevalence rate, there is still no cure for this disease. Even medicines are not very successful in slowing the progression of...
Happiness is found in reconnecting with old friends. The memories flood your soul, making it smile. Unknown Life is a dynamic journey marked by constant change. As we navigate through various phases, our priorities, circumstances, and even our very selves evolve. One remarkable aspect that stands the test of time is the beauty of lifelong friendships. These connections...
Testing for genetics has experienced significant growth and innovation since the completion of the Human Genome Project 20 years ago. This technology has become a vital tool in diagnosing a wide range of diseases, from rare genetic conditions to certain cancers. Moreover, genetic testing empowers patients and healthcare providers by guiding treatment decisions and preventive...
Hi, friends. For those who struggle with standing, balancing, or walking due to illness and/or old age, daily minutiae can become a huge burden once the leg and hip muscles atrophy. Using the toilet, taking a shower, simply getting from point A to point B–every little obstacle is a mountain. While the progression of time or disease...
Getting a new diagnosis, especially one that brings life-changing challenges, can feel like you’re stepping into a world you didn’t choose.  It’s overwhelming and confusing, and you’re likely flooded with questions.  How will this impact your future?  What will it mean for your relationships, dreams, and future?  While every diagnosis journey is unique, the feelings...
Does it ever feel like your brain is in a fog? Do you find it increasingly impossible to focus or concentrate? Are you constantly in a state of mental fatigue, with impaired memory and slow recall? If so, then you may be experiencing a condition known as brain fog. In this post, we’ll discuss what brain fog...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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