Category

Ataxia Awareness
Living with Ataxia comes with plenty of challenges, but one of the toughest hurdles is overcoming the misconceptions people have about the condition. I recently came across a blog post by Elise from Elisability titled Common Misconceptions About My Ataxia. Elise begins by addressing a myth many people with Ataxia encounter: mobility aids signify a...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
Recent News:  FDA approves first gene-editing treatment for human illness In the vast landscape of medical advancements, hope is a powerful force. Disclaimer:  I wrote this article after I read the above story about Sickle Cell.  Please do your own research and talk to your medical professional about the possibilities for other conditions like Ataxia....
Living with ataxia presents a multitude of challenges beyond the physical realm, often overshadowed by the visible symptoms. In this candid narrative, Kate shares her profound impact of ataxia on mental health, shedding light on a facet of the condition that is frequently overlooked. The journey begins with the onset of symptoms during university years,...
The advance of technology is based on making it fit in so that you don’t really even notice it, so it’s part of everyday life. Bill Gates Living with a neurological condition like ataxia can be challenging, as it affects coordination, balance, and muscle control. However, advancements in technology have introduced innovative solutions that can...
Whatever you do you have to keep moving forward. Martin Luther King In my world, life is a continuous journey of change.  I get it.  Change can be scary, and most folks would do just about anything to avoid it.  However, I firmly believe that real personal growth and discovering who you truly are require...
Often misdiagnosed, misunderstood, and unseen. A sufferer writes of a silver lining in his tale of swoon and gloom. Timothy Wahl In this compelling narrative, Tim Wahl shares his poignant journey with Episodic Ataxia, a hidden impairment that dramatically altered the course of his life.  From the innocence of childhood to the challenges of adulthood,...
Lily shares the lessons she’s learned from living with a disability. She discusses the challenges of physical limitations and the surprising wisdom and perspective she’s gained. Lily’s story is one of resilience, humility, and a commitment to personal growth. It reminds us that we can all learn by listening to others with similar stories. Lesson...
Life is a work in progress. Jeff Rich For me, Thanksgiving is not just a holiday but a cherished tradition, a time when the hustle and bustle of daily life takes a backseat to embrace the simple yet profound act of giving thanks. Everything about it, from the rich aroma of a roasting turkey and my...
This a poem I wrote for Brian Oliveira my husband who passed away from complications associated with Spinocerebellar Ataxia Type 3 (SCA3).  Dedicated to Brian OliveiraWritten by Sari Oliveira. Imagine for a second what it would be like:Just to live? Imagine having your entire life where living was exhausting?But you still showed up and did...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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