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Neurological
This site is about building Ataxia Awareness and one of the many types is Gluten Ataxia. Please consult a doctor if you feel like you may have this condition. Gluten ataxia is a progressive condition, which means that symptoms may start off mild and almost unnoticed, and gradually progress to being debilitating. In recent years, there...
Darcy’s story is a powerful reminder that even with a rare condition like CACNA1A mutation-related ataxia, you can still live a full and meaningful life. She inspires everyone by showing us that resilience, adaptation, and raising awareness are key to overcoming challenges. Discovering the Diagnosis Darcy’s journey to a diagnosis was a long and bumpy...
We pressure ourselves to fit into a particular ideal and be able to do certain things. For each of us, the standards vary. For the highly athletic person, perhaps it’s running X miles a day. For the average person who exercises, it may be the ability to lift X pounds on certain machines. For a NON-gym...
Imagine a world where the simple act of walking, balancing, or coordinating your movements becomes a daily struggle.Learning to live with a progressive condition is a harsh reality. As I get older, simple things that I used to take for granted are becoming more and more difficult. I know everyone with Ataxia and other movement disorders...
Megan’s story is a true inspiration. She’s faced many challenges living with type 1 ataxia, a progressive neurological condition, but she’s never given up. She’s shown incredible strength, perseverance, and hope. Discovering the Diagnosis Megan’s story started with subtle symptoms that most people would ignore.  Like many people with Ataxia, her balance and coordination problems...
Population Estimate:  Fewer than 1000 people in the U.S. have this disease. Imagine waking up one day and finding it increasingly difficult to control your movements. Simple tasks like walking, writing, or even eating become monumental challenges.  This is the harsh reality for those living with ataxia, a group of neurological disorders that affect coordination...
Marth’s website:  https://miracle-answer.org/a-cure/ and Post Published: December 12, 2022Ataxia is a neurological condition that occurs in children and adults. In fact, 26 out of 100,000 children are afflicted with this condition. Despite this high prevalence rate, there is still no cure for this disease. Even medicines are not very successful in slowing the progression of...
Getting a new diagnosis, especially one that brings life-changing challenges, can feel like you’re stepping into a world you didn’t choose.  It’s overwhelming and confusing, and you’re likely flooded with questions.  How will this impact your future?  What will it mean for your relationships, dreams, and future?  While every diagnosis journey is unique, the feelings...
Does it ever feel like your brain is in a fog? Do you find it increasingly impossible to focus or concentrate? Are you constantly in a state of mental fatigue, with impaired memory and slow recall? If so, then you may be experiencing a condition known as brain fog. In this post, we’ll discuss what brain fog...
Where I am and where I’m going Part 3 of 3 I am Friedreich’s Ataxia! It is not the disability that defines you Jim Abbot I have heard that quote a lot. This condition took a large amount of my identity since it wreaked havoc on my life. I would not say my life was...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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