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Communication
In a heartfelt account shared by Jason Wolfer, we meet Chanda Huy, who is courageously navigating the challenges of a recent diagnosis of hereditary Spinocerebellar Ataxia.  Just a year ago, Chanda received this life-altering news, inherited from her father, which has profoundly impacted her daily life. Simple tasks that were once effortless for Chanda—like walking,...
In a touching narrative published on April 23, 2020, Jodie Kawa shares her journey with Spinocerebellar Ataxia type 2 (SCA2), shedding light on the impact of the disease on her life and the strength she finds in her community. Jodie’s awareness of Ataxia began at age ten when she learned of her mother’s diagnosis and...
February 16, 2024, by Day Undefined and Ellie Have you ever heard about the Sunflower Lanyard Scheme?  A sunflower is a global symbol for people with hidden disabilities. By wearing the sunflower, you’re letting everyone know that you might need extra help, understanding, or just more time. How it started This idea started in 2016 at...
The advance of technology is based on making it fit in so that you don’t really even notice it, so it’s part of everyday life. Bill Gates Living with a neurological condition like ataxia can be challenging, as it affects coordination, balance, and muscle control. However, advancements in technology have introduced innovative solutions that can...
I’ve watched plenty of relationships having disagreements unfold in real life and on reality shows. Like a lot of people, I become an amateur family therapist in those moments. I quietly observe misinterpretations and miscommunications happening in real-time. Someone takes something the wrong way and responds in an angry tone, then the other person becomes defensive;...
The human voice is the organ of the soul. Henry Wadsworth Longfellow Communication is an essential part of our human connection. It enables us to express our thoughts, emotions, and desires. However, for those of us in the Ataxia community, speaking can present a unique set of challenges. Some days, I wake up and my tongue feels 10...

My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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