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Ataxia
Living with Ataxia can make challenges with mobility and independence feel overwhelming. However, Ellie Martin shares in her insightful article that a service dog can be a transformative companion. Service dogs offer many benefits that extend far beyond their well-known roles. Finding the Right Match The first step in deciding whether a service dog is...
Lily’s insightful article, “The Importance of Strength (Especially for the Physically Limited),” discusses something many of us can relate to—whether due to disability, age, or even a temporary injury. So, I wanted to share my thoughts on why building and maintaining strength is an essential activity for anyone with physical challenges. Our Bodies are Designed...
The other day, I stumbled across a great quote…. “Did you know butterflies rest when it rains cause it damages their wings? It’s okay to rest during the storms of life. You’ll always fly again once it’s over.” Simple. Poetic. True. It got me thinking: How often do we push ourselves through the hard stuff,...
I saw a question recently about Sleep and Ataxia that stood out: “I’m having trouble falling asleep and staying asleep. Any recommendations?” Sleep issues are challenging for anyone, but with Ataxia, they can seem like an entirely different struggle. Some nights, regardless of how tired you are, your mind won’t quiet down, making it impossible...
Most people don’t think twice about dexterity until it begins to fade. If you live with Ataxia, you may have noticed changes in your fine motor skills over time. Tasks like buttoning a shirt, typing, or even holding a cup of coffee now require more effort and focus.  So, what can you do to keep...
Well, I am a rebel, but I have never considered myself a “degenerate.” Yet, this word now sadly has a ring of truth to it since I was diagnosed with Ataxia. Regular readers of MichaelMantz.com know what Ataxia is. However, if you’ve just stumbled on the site, Ataxia is a degenerative neurological disease that can...
I was flipping through the channels this morning, sipping my coffee, when I came across an interview with Brad Meltzer. He was talking about his new book, Make Magic, which comes out March 4, 2025. As I listened, I couldn’t help but feel like parts of it could have come straight from my writing. His...
Strength doesn’t come from what you can do; it comes from overcoming the things you once thought you couldn’t. Staying active with Ataxia can feel like trying to climb a mountain on a foggy day—every step takes focus, and the way forward isn’t always easy to see. But here’s the surprising part: keeping your body...
One of the most common questions people ask after an Ataxia diagnosis—whether for themselves or a loved one—is, “What kind of jobs can someone with Ataxia do?” It’s a fair question. Ataxia can make many jobs more challenging—there’s no getting around that. When your movement, balance, and coordination become unpredictable, it changes how you approach...
I recently watched part of the Christopher Reeve: The Man of Steel documentary on CNN. After his accident, he said something that stuck with me: “It’s hard to go from participant to observer.” That line hit me in a way I didn’t expect. It summed up something I’ve felt, something many of us with Ataxia...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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