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Ataxia

Exciting Updates on MichaelMantz.com: Discover Our New Features!

Michael MantzJuly 24, 2024Ataxia Awareness, My Story

I have some fantastic news to share with you today. At MichaelMantz.com, we constantly strive to provide the best content and resources to help you stay informed and empowered about overall health and Ataxia awareness. I’m excited to share our recent changes and additions to our website with you. Let’s dive into the details! Introducing...

Scientists Make Breakthrough in Lupus Research: Uncovering the Root Cause

Michael MantzJuly 18, 2024Ataxia Awareness, Research and Development

I just read some exciting news about lupus. Although this story is unrelated to Ataxia or movement, I think news like this could be critical to the future of our treatments. Scientists have made a groundbreaking discovery, pinpointing what could be the root cause of this challenging autoimmune disease. Let’s look at the details and...

A Mother’s Journey: Navigating Ataxia Telangiectasia with Love and Resilience

Michael MantzJuly 12, 2024Ataxia Awareness, Resilient Voices

In 1956, Josephine’s son was born healthy and seemingly normal. By nine months, he walked with assistance, and his language skills developed well, though speaking proved difficult. Frequent falls and coordination issues marked his early years. At 5, doctors discovered severe vision problems, and while glasses helped, his balance and coordination continued to worsen. His...

Ian’s Story: Living with Ataxia-Telangiectasia

Michael MantzJuly 11, 2024Ataxia Awareness, Resilient Voices

Ian, born in 1956, shares his life experiences with ataxia-telangiectasia (A-T), an autosomal recessive condition. At a young age, teachers noticed he fell more than other children, and at seven, he was misdiagnosed with cerebral palsy. Despite his challenges, Ian enjoyed his childhood, especially piano lessons, until spasms forced him to stop. At eleven, Ian...

How the Right Shoes Can Make All the Difference for Mobility Issues!

Michael MantzJuly 3, 2024Ataxia Awareness, My Story

Right shoes take you good places Shoes have always been important to me. I remember begging my parents for the newest and “coolest” styles, mainly basketball shoes. I know I am not the only one – almost everyone has gone through the same routine at some point. As my Ataxia has progressed, I have searched...

Embracing Gratitude: Finding Joy in Life’s Little Blessings

Michael MantzJune 29, 2024Ataxia Awareness, Resilient Voices

Change the way you look at things, and the things you look at change. Wayne Dyer Perspective Changes Everything is how Lily Pierce feels…… Perspective means realizing that others’ life experiences may completely differ from ours. What we view as normal and what we expect depends on how we grew up, what we see around us,...

Discovering the Cause of a Rare Neurological Disease

Michael MantzJune 21, 2024Ataxia Awareness, Research and Development

April 2024: After 25 years of research, scientists at the University of Utah have uncovered the genetic cause of Spinocerebellar Ataxia 4 (SCA4), a rare and progressive neurological disorder. This discovery gives affected people hope for future therapies. Spinocerebellar Ataxia 4 (SCA4) is a rare, debilitating condition that disrupts movement. Symptoms often start with difficulty...

Mobilizing a Community for Ataxia Treatments: The Importance of the Ataxia Patient Registry

Michael MantzJune 6, 2024Ataxia Awareness, Research and Development

A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts. Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...

Unwind Your Evenings: 4 Easy Tips to Reduce Stress

Michael MantzMay 29, 2024Overall Wellness

Everyone craves a relaxing evening, not just for the good vibes but also for the mental health benefits. Life’s daily grind, late work hours, social commitments, and family duties can make this seem unattainable. But you don’t have to give up on a peaceful night. Here are four practical tips to help you unwind, no...

Faces of Ataxia: Yesenia Ramos’ Journey and Poetry

Michael MantzMay 21, 2024Ataxia Awareness, Resilient Voices

At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...