October 27, 2023 WASHINGTON, D.C. – This week, U.S. Reps. Mike Kelly (R-PA-16), Congresswoman Doris Matsui (D-CA-07), Reps. Neal Dunn (R-FL-02), and Mike Thompson (D-CA-04), introduced the Providing Realistic Opportunity To Equal and Comparable Treatment for Rare (PROTECT Rare) Act. This legislation will support rare disease patients. In getting evidence-based, medically necessary care covered by their health insurance. Over 90%...

In the realm of managing movement disorders, telehealth has emerged as a crucial resource, particularly during the COVID-19 pandemic. Recent research indicates that over 60% of individuals living with Parkinson’s disease have embraced virtual visits with their physicians, marking a significant increase from previous usage rates. Beyond Parkinson’s disease, patients grappling with various movement disorders...

Through the rhythm of music, we find a bridge that unites the discord of ataxia, guiding every step towards harmony and newfound freedom. Unknown The human body’s ability to move seamlessly is a gift often taken for granted. However, even simple movements can be difficult for those of us with movement problems like Ataxia. Ataxia refers to...

Marth’s website:  https://miracle-answer.org/a-cure/ and Post Published: December 12, 2022Ataxia is a neurological condition that occurs in children and adults. In fact, 26 out of 100,000 children are afflicted with this condition. Despite this high prevalence rate, there is still no cure for this disease. Even medicines are not very successful in slowing the progression of...

Testing for genetics has experienced significant growth and innovation since the completion of the Human Genome Project 20 years ago. This technology has become a vital tool in diagnosing a wide range of diseases, from rare genetic conditions to certain cancers. Moreover, genetic testing empowers patients and healthcare providers by guiding treatment decisions and preventive...

Ataxia is a group of neurological disorders characterized by a lack of coordination and balance.  Ataxia can present with mild to severe symptoms. Several different factors such as genetic mutations, autoimmune disorders, brain or spinal cord injuries, can bring on Ataxia. However, there are a few approaches that have the potential to lead to new...