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Research and Development
If you’re living with Ataxia—or know someone who is—you’ve probably heard some buzz about new treatments on the horizon. One of the biggest headlines lately is the progress of Troriluzole, a new drug from Biohaven that is currently under FDA priority review for Spinocerebellar Ataxia (SCA). (Read the official news release here.) Why am I...
Do you ever wonder why you feel so good after a great workout or a delicious meal?It’s all thanks to dopamine, the brain’s feel-good chemical. Scientists have been studying how Dopamine Pathways works and made some amazing discoveries! It turns out that dopamine isn’t just about feeling good. It also plays a big role in...
Bill Nye, known for making science accessible, joins forces with the National Ataxia Foundation to spotlight Ataxia. This rare neurological condition disrupts coordination and balance, impacting tens of thousands worldwide.  This initiative, supported by “Good Morning America,” brings public attention to Ataxia’s symptoms, challenges, and the critical need for awareness and research.  Nye’s connection is...
I just read a great article on PR Newswire, and it could be an exciting opportunity.  But please, talk to your own medical professional about your options.  Disclaimer: This article is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare professional...
CITGO has again shown its commitment to community and health by Fundraising over $2.9 million for the Muscular Dystrophy Association (MDA).   This incredible achievement reflects CITGO’s dedication to improving the lives of those affected by neuromuscular diseases. While this effort is focused on muscular dystrophy, the impact of such fundraising goes beyond a single...
I just read some exciting news about lupus. Although this story is unrelated to Ataxia or movement, I think news like this could be critical to the future of our treatments.  Scientists have made a groundbreaking discovery, pinpointing what could be the root cause of this challenging autoimmune disease.  Let’s look at the details and...
April 2024: After 25 years of research, scientists at the University of Utah have uncovered the genetic cause of Spinocerebellar Ataxia 4 (SCA4), a rare and progressive neurological disorder. This discovery gives affected people hope for future therapies. Spinocerebellar Ataxia 4 (SCA4) is a rare, debilitating condition that disrupts movement. Symptoms often start with difficulty...
A Community Mobilized Toward Treatments The National Ataxia Foundation (NAF) is deeply committed to finding treatments and cures for Ataxia. Since its inception in 1957, NAF has strived to mobilize resources and support from the community to advance research efforts.  Sue Hagen, the Patient and Research Services Director, emphasizes the critical role of patient involvement...
It takes a long time to develop a new drug. Not to mention it can be very expensive. But why does it take so long and cost so much? In this article, we will be going through the five key steps in drug development to shed some light on this process. Step 1: Discovery and...
Recent News:  FDA approves first gene-editing treatment for human illness In the vast landscape of medical advancements, hope is a powerful force. Disclaimer:  I wrote this article after I read the above story about Sickle Cell.  Please do your own research and talk to your medical professional about the possibilities for other conditions like Ataxia....
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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