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Ataxia Awareness
Raising awareness is the first step toward change. Together, we can bring hope, inspire action, and create a world where Ataxia no longer limits lives. What is Ataxia Awareness Day? Ataxia Awareness Day, September 25th, is a global event to raise awareness about Ataxia, a group of neurological disorders affecting coordination, balance, and speech. This...
Acceptance is not a sign of weakness; it’s a declaration of strength. It’s the courage to face reality and the wisdom to find a way forward. We’ve all faced moments where life feels like it’s throwing us a curveball. Whether it’s a health diagnosis, a significant life change, or just a series of tough breaks, it’s...
Catherine Meredith’s life took an unexpected turn when she was diagnosed with Ataxia at the age of forty-nine, during her fifth year as a fourth-grade school teacher.  Initially dismissing her symptoms as minor issues like a sore knee, Catherine’s journey with Ataxia began to unfold when she started experiencing difficulties with speech and walking. Despite...
CITGO has again shown its commitment to community and health by Fundraising over $2.9 million for the Muscular Dystrophy Association (MDA).   This incredible achievement reflects CITGO’s dedication to improving the lives of those affected by neuromuscular diseases. While this effort is focused on muscular dystrophy, the impact of such fundraising goes beyond a single...
Success is not final, failure is not fatal: It is the courage to continue that counts. Winston Churchill Living with Ataxia is tough and can often feel overwhelming. The physical limitations, the unpredictability of symptoms, and the emotional toll can make even the simplest tasks seem frightening.  But here’s the thing……. how you approach these challenges...
Prepare for an exciting and impactful event—Ataxia Advocacy Day 2024 on September 25th! This event is a fantastic opportunity for us to unite, raise our voices, and advocate for those affected by Ataxia. What’s Happening on Advocacy Day? Ataxia Advocacy Day 2024 is about making our voices heard on Capitol Hill.  You can meet with...
Strength does not come from physical capacity. It comes from an indomitable will Mahatma Gandhi Living with a disability brings many challenges, but it also offers opportunities for growth, resilience, and hope. It is important to focus on the positives and find ways to adapt and thrive despite the difficulties. Understanding Disabilities Many different types...
I have some fantastic news to share with you today. At MichaelMantz.com, we constantly strive to provide the best content and resources to help you stay informed and empowered about overall health and Ataxia awareness. I’m excited to share our recent changes and additions to our website with you. Let’s dive into the details! Introducing...
I just read some exciting news about lupus. Although this story is unrelated to Ataxia or movement, I think news like this could be critical to the future of our treatments.  Scientists have made a groundbreaking discovery, pinpointing what could be the root cause of this challenging autoimmune disease.  Let’s look at the details and...
In 1956, Josephine’s son was born healthy and seemingly normal. By nine months, he walked with assistance, and his language skills developed well, though speaking proved difficult. Frequent falls and coordination issues marked his early years. At 5, doctors discovered severe vision problems, and while glasses helped, his balance and coordination continued to worsen. His...
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My purpose

michael mantz
Life rarely goes as planned. This blog is about navigating what actually happens – major disruptions, health challenges, and the quieter work of figuring out who you are through all of it. I write from inside that process. I have Spinocerebellar Ataxia (SCA 15), a rare neurological condition that shapes my perspective but doesn’t define this space. Some articles are personal. Some are practical. All of them are honest.

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