A Snapshot of My Journey; Present and Unfiltered – Part 2

book - michaelmantz - ataxia blogs4

Life is a dance. Mindfulness is witnessing that dance.

Amit Ray

In the first part, A Snapshot of My Journey, I described some of the challenges I have had. But now, let’s turn the focus to positive things. I have shared articles on here in the past about our mindset, being grateful, etc.  

Yeah, the past 2 months have been a challenge. But some great opportunities have also shown up. And what great timing! I must be honest, mentally, I have been struggling. Things were just not moving as fast, or in the direction, as I pictured. Until recently. 

I am trying to stay present in the moment. It’s difficult and not something I tend to do. Let me explain.

Every day, new people are finding my site and are reaching out. People are telling me that I am helping in changing the way they think. How powerful is that?? As one of my good friends put it, I am a “trailblazer” with what I am doing. Ha-ha, their words, not mine. And because of this work, I have been asked to be a Guest Speaker for some international Ataxia groups. 

In addition to the guest speaker, several brands have reached out to me for a potential partnership.  Some social media platforms have labeled me a “creator” and additional opportunities have opened because of that. 

Now let’s talk about my book. This is something I have worked on and talked about for years. And if you remember, in earlier articles, I told you that I had finished it years ago. But I was never comfortable enough to get it out. It’s just not that good! 

Therefore, I’ve been cleaning it up over the past few months, and still have work left to do.

Last week, out of the blue, I received an email reply from a literary agent. This is a person I reached out to 10-12 years ago. When I had first finished my book and was trying to get published. She asked me if I had ever published it and was curious what I had done. I explained that I was in the process of a rewrite. Her advice was “Every literary agent in the world will want to see a “book proposal” first, for this type of book.”  “How could I not know that?” That was my first thought. 

The process is, or tends to be, a book proposal first. And if a publisher buys it, then I can finish writing it.  And if no one buys it, I will finish the writing and self-publish. Either way, I have a new fire under me to work on the proposal and get a publishing contract.  Exciting right?

My last highlight is Neurofeedback therapy. 

I have been on a waiting list for months for this therapy. And finally, I started last week. Let me explain what this is and how it can possibly help my mental clarity and possibly some of the Ataxia conditions, specifically, my head tremors.

According to the National Library of Medicine, Neurofeedback is a method that assists subjects to control their brain waves consciously. In fact, the electroencephalography (EEG) is recorded during the neurofeedback treatment. Then, its various components are extracted and fed to subjects using an online feedback loop in the form of audio, video, or combination.

Last Friday, we went over the results from the brain mapping I did in November. 

I couldn’t believe how one scan, at only one point in time, summarized everything. And the results were unbelievable. It was like she was explaining exactly how I have always felt. 

My understanding is that it takes a certain number of sessions for the new connections to become permanent. And since we had time, I did my first session. It involved 2 small connections on top of my head and 2 clips on my ear lobes. Once the setup was complete, and I was seated in a comfortable chair, she played a movie.  Batman, the Dark Knight. I only watched about 15 minutes. The therapy is in the formatting and sound. The picture changed shapes and sounds were added throughout. 

It is so simple and yet, afterward, I felt better mental clarity than I have in quite a while. Those feelings only lasted a couple of hours, but I now know that it does work. To what extent? Only time will tell, and I will send out updates throughout the process. But if this can improve my mental state and possibly, even just a small amount, my Ataxia, and the symptoms, this will be well worth the time!


There are some additional things I wanted to discuss for this theme of ‘Staying in the Present.’  But I will save those for another article. Today, I just wanted to detail the ups and downs of the past 2 months. I must constantly remind myself to stay in the “now” and not try to plan everything to be perfect, in the future.  But some of these opportunities are exciting.  Not only for me personally but for my campaign of Ataxia Awareness.

In simpler terms, staying present means actively choosing to enjoy each moment of life. It’s about finding happiness in everyday things, comfort during tough times, and seeing the beauty in things that aren’t perfect.  

If you would like to get involved and share your experience with Ataxia, don’t hesitate to get in touch with me and join Our Community today. A place where we empower you to build a healthy lifestyle and raise overdue Ataxia Awareness. Experience transformative storytelling and share your story to inspire positive change.

Related Posts

Leave a Reply

My New Stories

Ataxia Patient Registry
Relaxing Evening
Yesenia Ramos Journey
wheelchairs are not embarrassing
Respect for Mobility Aids