Empowering Family Planning: Jessica’s Journey with IVF PGD

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Jessica’s story is one of resilience and determination in the face of hereditary disease.  After learning about her 50% chance of inheriting Ataxia, she embarked on a journey that led her to in-vitro fertilization preimplantation genetic diagnosis (IVF PGD) to start a family free from the shadow of Ataxia.  Through IVF PGD, Jessica and her husband successfully selected embryos without the SCA3 gene mutation, ensuring a healthy future for their children.

Despite the initial challenges, Jessica found strength in community support, particularly through the National Ataxia Foundation.  Attending annual conferences and engaging with others facing similar struggles provided her with a sense of belonging and solidarity.

Jessica’s commitment to advocacy and research reflects her determination to make a difference in the fight against Ataxia.  By participating in studies and sharing her story, she hopes to contribute to advancements. In treatment and ultimately find a cure.

Embracing the present with determination, Jessica lives each day to the fullest, cherishing moments with her family and staying active.  Her journey exemplifies the power of knowledge, resilience, and hope in overcoming life’s challenges.

We would like to thank Jessica and NAF for sharing her story with us.  As always, we welcome your thoughts and value your feedback.  Let us know what you think by dropping us a line or commenting below.

If you would like to get involved and share your experience with Ataxia, please contact us and join Our Community today. A place where we empower you to build a healthy lifestyle and raise overdue Ataxia Awareness. Experience transformative storytelling and share your story to inspire positive change.


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