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Resilient Voices
In 1956, Josephine’s son was born healthy and seemingly normal. By nine months, he walked with assistance, and his language skills developed well, though speaking proved difficult. Frequent falls and coordination issues marked his early years. At 5, doctors discovered severe vision problems, and while glasses helped, his balance and coordination continued to worsen. His...
Ian, born in 1956, shares his life experiences with ataxia-telangiectasia (A-T), an autosomal recessive condition.  At a young age, teachers noticed he fell more than other children, and at seven, he was misdiagnosed with cerebral palsy.  Despite his challenges, Ian enjoyed his childhood, especially piano lessons, until spasms forced him to stop. At eleven, Ian...
Change the way you look at things, and the things you look at change. Wayne Dyer Perspective Changes Everything is how Lily Pierce feels…… Perspective means realizing that others’ life experiences may completely differ from ours. What we view as normal and what we expect depends on how we grew up, what we see around us,...
At twenty-three, Yesenia Ramos from Edmond, Oklahoma, reflects on her life with Friedreich’s Ataxia (FA), a condition she was diagnosed with at the tender age of six. Her Mexican heritage is a significant source of pride, and she lives with her supportive parents and an older brother who also has FA. Yesenia’s path to diagnosis...
At least, they shouldn’t be. But here we are… Lily Pierce It’s sad when people limit their lives rather than use a mobility aid.  Many feel embarrassed to rely on a walker or wheelchair due to societal stigma.  At 19, Lily’s Friedreich’s Ataxia progressed, leading to frequent falls.  After resisting, she finally bought a rollator...
Life is about accepting the challenges along the way, choosing to keep moving forward, and savoring the journey Roy T. Bennett In Richard’s insightful blog post, he shares his journey of adapting to life with Ataxia through practical solutions and supportive technology.   When he and his wife moved into their forever home in 2013,...
When we think about mobility aids, we often overlook the emotional journey that accompanies their use. In her blog post, Elise explores this journey, reflecting on the stigma and internal struggles she faced before fully embracing the use of mobility aids.  This story resonates deeply with many of us who have felt hesitant or embarrassed...
Hope is being able to see that there is light despite all of the darkness. Desmond Tutu I have mentioned Neurofeedback therapy in past articles and now that I have completed a few sessions, I wanted to expand on my experience. As always, I am trying to learn what treatments and therapies are working for everyone. If...
In a heartwarming story shared by Jason Wolfer, we meet Mary Scheetz, a resilient individual living with Spinocerebellar Ataxia number Eight in Portland, Oregon.  Mary’s journey with Ataxia began over a decade ago, marked by a series of symptoms that gradually led to her diagnosis. Reflecting on her experience, Mary recalls the onset of food...
Fatigue is the shadow of ataxia, but within that shadow, we can discover the strength to shine. Living with ataxia, a neurological disorder that impairs movement and coordination, comes with special difficulties that go beyond physical symptoms.  Constant fatigue is one of the most common and confusing symptoms that people with ataxia face.  It’s important to...
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My purpose

michael mantz
To continuously empower others on building healthy lifestyles where personal/spiritual growth is prioritized, the pursuit of positive mind-body change is valued, and the notion of making the most out of life is a core motivation. In addition, to raise overdue Ataxia Awareness and spark meaningful perspective shifts that both present-day society and future generations can mutually benefit from.

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